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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Are You Taking Adcirca (Tadalafil) For PAH?

Are You Taking Adcirca (Tadalafil) For PAH?

Did it help? If yes, how long did it take to work, and what difference did you notice. Did you have any side effects?

A myPHteam Member said:

Yes, I have been taking Adcirca/Tadalafil for over two years. Immediate side effects were severe flushing, body aches and headache. After two weeks or so they steadily subsided. Then I began ambristenan/Letaris. 6 months later I Went to U of U where they have a special PAH program. There I was aggressively started on uptravi.
I'm over two years down the road and my symptoms have improved immensely. Stay the course! Fatigue has lessoned, sleep finally better, O2 is 24/7 but my demand level has come down from 9 to 5 liters upon exertion and only 2-3 just busy around the house.
The regimen is brutal no way around it, but it's doing better I really like!

posted 4 months ago
A myPHteam Member said:

Charlene
Costco is $12 with Good RX

edited, originally posted 2 months ago
A myPHteam Member said:

I had to quit taking it this week. I took the full dose for a week, then a half dose for three weeks. It made me extremely short of breath, unable to walk more than 5 steps, unstable. I saw my cardiologist who immediately sent me to the hospital (I'm there now) where I lost 17 lbs of fluid in 36 hours, thanks to IV lasix. They said not to take the Talafafil. I don't know if we'll try again - it could be a coincidence and I was going into heart failure anyway (which happens often enough) but it was much worse this time.

Thanks to all for your responses. I will certainly be adding you all to my team as soon as I get more than 2 minutes of energy.

posted 3 months ago
A myPHteam Member said:

Just started taking Tadalafil, verdict is still out :) I'm also on Ambrisentan.

posted 4 months ago
A myPHteam Member said:

I am taking it have been for 3 months I feel no difference, I also take opsumit I'm starting remodulin soon so maybe then ill feel a difference then. I am group 1 function class 4.

posted 4 months ago
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