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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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I'm Venting Here And Not Looking For Sympathy.

I'm Venting Here And Not Looking For Sympathy.

So yeah I get it I have this terminal disease and its progressive and I end up suffocating.

I have had major anxiety problems my entire life and I don't know what to do with the time left.

posted 11 hours ago
A myPHteam Member

Love that Pat!
I remember American Bandstand and how about the Midnight Special with Wolfman Jack!!!

posted 2 hours ago

Has Anyone Had Pulmonary Rehab? Did It Help?

Has Anyone Had Pulmonary Rehab? Did It Help?

posted 20 hours ago
A myPHteam Member

Ohhhhh……I’m soooo HAPPY to hear it had helped you!!!!!!!! A deffident blessing!!!!!!!❤️

posted 11 minutes ago

Are There Breathing Exercises That Any Of You Recommend?

Are There Breathing Exercises That Any Of You Recommend?

posted 1 day ago
A myPHteam Member

Pearly❤️
A lot of people swear by Pursed Lip breathing and 😍 love it. Give it a try‼️ Good luck sweetie pie❤️🌲❤️🌲
“ Sniff the 🌹… read more

posted 3 hours ago

Does Cold Or Windy Weather Affect Anyone?

Does Cold Or Windy Weather Affect Anyone?

posted 1 day ago
A myPHteam Member

Hi Pearly. I know the cold weather makes me cough so I wear a mask and that helps.

posted 21 hours ago

Sildenafil

Sildenafil

My doctor just started me on this drug. How long does it take to see an improvement.?

posted 1 day ago

Does Anyone Struggle With Weight Gain? Any Tips (besides The Obvious Of Eating More)? How Do You Stay On Top Of Your Weight Gain Goal?

Does Anyone Struggle With Weight Gain? Any Tips (besides The Obvious Of Eating More)? How Do You Stay On Top Of Your Weight Gain Goal?

Looking for an accountability partner… I’ve struggled with weight gain all my life… stress often gets in the way and I lose track

posted 2 days ago
A myPHteam Member

Thank you both for your responses!
Lol I actually meant weight gain in an “I would like to” sense. I’m extremely underweight for my height and it’s not healthy… especially when dealing with illnesses.

posted 1 day ago

Heart Pounding

Heart Pounding

over the past 6 days or so I've noticed my heart beating hard. It last 1 to 15 minutes and goes on and off throughout the day. It didn't do this while I was exercising yesterday, only at rest or standing in the kitchen working on stuff. I have no Ph symptoms yet and don't find heart beating hard as one. It's not beating fast just hard enough to definitely notice my chest is beating. I do have appointment to see my primary tomorrow and it's on my list of questions.
Any ideas?
Mary

posted 3 days ago
A myPHteam Member

Mary669: Have you been dx. with A Fib = Atrial Fibralation ?? I ask because that is an irregular heartbeat and many of us with PH do have it. The interesting thing is all the females in my family… read more

posted 3 days ago

Hearing Difficult

Hearing Difficult

Started with ringing left ear- keepin me up last few nights
Been taking meds for sinus trouble last 8 weeks as well but last week up to different level. Hearing affected in last week - pulsating and tunnel like.

I take Taladafil and Opsumit for PAH ( Scleraderma
Limited induced) my PAH is mild w exertional sob.
PAH dx in Jan/2022- started on meds in February.
Any thoughts?
Have to call dr’s…and get sinus vs PAH med insigght…

posted 4 days ago
A myPHteam Member

I have ringing in my rt ear. I hear it when it's quiet with no fan on. Hate it. It is what it is

posted 4 days ago

Hearing Difficult

Hearing Difficult

Started with ringing left ear- keepin me up last few nights
Been taking meds for sinus trouble last 8 weeks as well but last week up to different level. Hearing affected in last week - pulsating and tunnel like.

I take Taladafil and Opsumit for PAH ( Scleraderma
Limited induced) my PAH is mild w exertional sob.
PAH dx in Jan/2022- started on meds in February.
Any thoughts?
Have to call dr’s…and get sinus vs PAH med insigght…

posted 4 days ago
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