My grandson who is 7 has Pulmonary Arterial Hypertension and has had this done 1month ago. His doctor told us that they do this in children to stay ahead. Is this true?
I have PH, I also have arthritis. Does PH in and of itself cause pain anywhere besides the chest area? I don't know if my arthritis is worsening or is it the PH? The bones below my shoulders hurt, my feet hurt, pretty much a lot of things hurt. I guess I should go back to the rheumatologist... Anyone else have just pain everywhere?
I have too be on oxygen 16 hours a day does that mean I have too be on it 16 hours straight or can I do it in block sections
Hi guys I’m 19 years old with mild ph pressure of 40. I have taken adcirca it made me pass out, I’m currently on opsumit been on for 1 week and feels like breathing is not getting any better, maybe it’s too soon but my body reacts to medicine quick. I have group 1 PAH due to CHD that got closed. I also run low blood pressure so the medication is sometimes hard to find. Does anyone know or recommend any medication that I can ask my doc?? I see a lot of medication drops blood pressure and cause… read more
I've been blessed with some improvements in my health but still find myself fatigued quite often especially at times when I want to be more active. I know the COPD and accompanying PH won't go away. I know they will probably get worse. I'm slower than I was, more SOB than I was, but I'm still trying to function without slowing my family and friends down. It is at those times when I feel "left behing" and… read more
I recently had two heart and right sided caths. Both times the first cath on oxygen pulse oximeter went down to 71 even on a bpap machine. The second week I was on my cpap machine with oxygen and the pulse oximeter went down in the 60's. I have 70% blockage in one artery but they can not get the clot to break up. They can not do bypass because of the respiration issues and the PH.. Does anyone have any suggestions on how to improve my… read more
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