Pulmonary Hypertension
Questions + Answers
Heart-lung transplant
I am on 10 liters of oxygen...is anyone on that amount.
Has anyone experienced their PH symptoms getting worse after starting CPAP therapy with oxygen?
I have been on a CPAP machine every night for over a month and I am getting more dizzyness, headaches, even less energy and looking very tired and not well. I am not able to walk as far as I use to. Just going into the hospital or grocery store I have to either ask for a volunteer to take me via wheel chair to my husbands room and than when leaving back out to the car. Even getting the closest parking space I can to a… read more
Enrid I am curious how did the visit with your pulmonologist go? I hope it went well and positive for you. Glad to have you participate.
Looking for portable oxgyen concentrator good ones
I'm considering Inogen g3 unit 2018 new intelligence. . Any feedback? Thanks
Chest pain
Please describe your chest pain associated with PAH.
How it comes and goes?
How much time it takes to lost?
Where exactly it occures?
And other related information please......
Does anyone have the Oxygo Portable machine?
I have the Oxygofit right now. At home i am on 4 ltrs and feel fine. But the oxygo fit only goes to 3 ltrs which is starting to limit my activites. Lincare stated the Oxygo battery only lasts 1 hr but the information on the internet states the battery lasts 2 hours on 4 ltrs. Does anyone have the Oxygo and can tell the their experience using the machine. Lincare stated I can only use tanks from this point forward.
Did anyone go to the PH conference over the last two days? What was the highlight of the conference?
Will the highlights,new treatments and any information given at the conference be available for those of us who were unable to attend?
Ive had to change what i eat after this last stroke, otherwise no coughing. Rice seems to form a dam, so no more of that.
Need dome feedback on vague test results
On 6/1 had several diagnostic tests. A nuclear stress test. And i believe a scan right after and about 3 hrs later. Also had echocardiogram and EKG. Result..told everything looked fine, have a valve reguritation.not sure what valve and some blockage in carotid arteries. But want to wait to put a stent in. No mention of treatment for valve reguritation. Only they want to see me in a year. To me this is scary. Im 72 and dont want to have a stroke or HA before anything is… read more
You need to have a Right and Left heart cath to evaluate your cardiac pressures for positive diagnosis of Pulmonary Hypertension. If the pressure are… read more
Symtoms
Hi plz let me know what is your main symptoms? How much time it takes? Your mPAP?
I have slight chest pain on my left side near to arm and having episodic extra beats.
Im not sure am I ph pationt or not because my 1st echo showed mPAP = 30 mmHg and ladt echo showed sPAP (not mPAP)= 30 mmHg. I currently have no other symptoms. No one is taking me serious. Plz help me im very depressed
I would like you to add me on FB
www.fb.me/fazalali555
it took at least 8 years to find out what was really happening to me. One of the main symptoms were chest pain, shortness of breath, fatigue, unable to… read more
Has anyone had a lung transplant at Duke or the Cleveland Clinic?
I knew a lady who done a double lung transplant at Cleveland. She did really good.