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Pulmonary Hypertension

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Result Of Blood Work—NT-proBNP-1,837….results Say High…is It? Purpose Of Test

Result Of Blood Work—NT-proBNP-1,837….results Say High…is It? Purpose Of Test

posted 4 days ago
A myPHteam Member said:

Helen5, yes your numbers are high. These numbers give your doctors the severity of heart failure and allows them to provide other treatments which can help your heart function better. Stay on top of… read more

posted about 1 hour ago

Contaminated Oxygen Tanks

Contaminated Oxygen Tanks

I use Lincare for oxygen equipment. Both a home concentrator and tanks. I have had new tanks that are empty. Always have more spares than I think I will need on the road. Use mostly an electronic regulator. A few days ago I started having an odd taste on my lips and then sorta oily. Lips were a darker red than 'normal'. Anyone have what would seems to me like contaminated air tanks?

posted 5 days ago

I A! Constantly Short Of Breath, High Heart Rate And Terrible Exhaustion. On Uptravi 1000 Mcg Bid. Nothing Seems To Help.

I A! Constantly Short Of Breath, High Heart Rate And Terrible Exhaustion. On Uptravi 1000 Mcg Bid. Nothing Seems To Help.

posted 6 days ago
A myPHteam Member said:

I am titrating. Started at 200 increasing 200 every week. Some days ok others not so much. Just wondering when I'll get some relief. Ok right now

posted 5 days ago

Opsumiti

Opsumiti

I'm 51 I was prescribed opsumiti,3 days ago.. I haven't started taking it yet waiting for it in mail. Is opsumiti we'll tolerated has anyone had any severe allergic reactions to it..

posted 7 days ago
A myPHteam Member said:

Part2: did you know you only get 3000 characters? I’m way to wordy for this site.

Anyway, I do have a couple non-side effect related grips about opsumit.

First, I’m 50 and every time I order… read more

posted 5 days ago

Pirfenidone

Pirfenidone

My husband just started this drug and I wanted to know if anyone has had side effects or had good results? It is VERY expensive. Is there any financial aid out there?

posted 8 days ago
A myPHteam Member said:

Also, check with the pharmaceutical firm. They usually have ways to lessen the price.

posted 8 days ago

What Works For Fluid Overload?

What Works For Fluid Overload?

Is there another way to get rid of fluid? We've tried a lot. The hospital IV works a little (lasix). I hope I can get this off. So uncomfortable and makes my breathing too difficult.
I'm on 200mg torsemide and spirlactone, daily. Can't do Metolazone because of kidney trauma.

posted 8 days ago
A myPHteam Member said:

I take oral diuretics. I started with lasix, bumex, Metolazone, Spironolactone, and torsemide.
Currently, on IV bumetinide in hospital.

posted 5 days ago

BNP Blood Work? Anyone?

BNP Blood Work? Anyone?

My lung specialist ordered a blood test for BNP. I have had chf for 29 years and pah for 10 years and this is then first time I've even heard of this. Is anyone familiar with this blood test?

posted 8 days ago
A myPHteam Member said:

Judy6.:.::if you’re heart function is 48— & has gone up gradually to 48…..I would be guardingly optimistic 😏. Good luck…..I’ve got my fingers crossed for you 🤞🏻🙏🏻🤞🏻

posted 6 days ago

I Take Tyvaso And Get Chronic Diahreah Anyone Else? What Helps?

I Take Tyvaso And Get Chronic Diahreah Anyone Else? What Helps?

posted 13 days ago
A myPHteam Member said:

Its a good question for your doctor. I alsohad this experience at the beginning of Veletri . It seemed to go on for a couple months before my body adapted and normalized.

posted 6 days ago
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