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Pulmonary Hypertension

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Traveling With Oxygen

Traveling With Oxygen

Has anyone flown with oxygen? I have a trip coming up and not sure if I should use it just for take off and landing. Also, are people patient about it?

Prevagen Vs Neuriva

Prevagen Vs Neuriva

Have any of you tried Prevagen or Neuriva for help with memory?

A myPHteam Member said:

Amen I too will be praying for speedy recovery and direction of do tors to aid in betterment of your quality of life care and god bless you ❣️

posted about 10 hours ago

Does Anyone Use The Remodulin Pump Where You Mix Your Medicine And Replace The Reseroir Every 3 Days? How Is It?

Does Anyone Use The Remodulin Pump Where You Mix Your Medicine And Replace The Reseroir Every 3 Days? How Is It?

A myPHteam Member said:

Thanks Qhankerson23
It's interesting, my Dr. now is going to replace my Tyvaso with Uptravi, instead of the remodulin. I wonder how they decide which drug to use. I'll be glad to go to 2 pills a day… read more

posted about 4 hours ago

Question About Oxygen And Dating

Question About Oxygen And Dating

I recently got back out into the dating world. At 51 years old, it's not as easy as it used to be lol. But I met someone recently, and we had the discussion of, other than going out to eat and seeing a movie, what other things can we do for fun where I can still wear my oxygen? Does anyone have any ideas?

A myPHteam Member said:

All good ideas

posted 3 days ago

. How Often Should We Have A Catherization Done? How Often Does Your Pulmonologist Recommend Having It Done?

. How Often Should We Have A Catherization Done? How Often Does Your Pulmonologist Recommend Having It Done?

How often are right heart catherizations done. I wonder as I feel I am getting worse. Has anyone had them done more than twice and it’s it used to check your severity of the disease?

A myPHteam Member said:

SharonFlynn. The Catherization is a procedure used to help diagnosis PH. It’s very helpful in most cases.

posted 2 days ago

Pulmonary Fibrosis

Pulmonary Fibrosis

Is P.F. in the same family as P.H.?
Thank you,

A myPHteam Member said:

They are not in the same family
PF is considered familial when two or more members within the same family have idiopathic pulmonary fibrosis (IPF) or any other form of idiopathic interstitial… read more

posted 19 days ago

Pfizer

Pfizer

So I'm a little nervous but I should be getting my first dose Friday. My doctor said it will not cause worse heart palpitations or shortness of breath in fact he highly recommended me getting vaccinated. I'm so nervous

A myPHteam Member said:

Anxiety seems to come with territory, sometimes….if you could just sit and be calm and rest, or lay down and be calm, I believe it would help. People like to call it meditation and that’s true but… read more

posted 3 days ago

Does Anyone Here Ever Get Choked When Merely Drinking Liquids?

Does Anyone Here Ever Get Choked When Merely Drinking Liquids?

A myPHteam Member said:

OMG, I'm interested to see the answers because this happens to me & I assumed it had been related to my trach.

posted about 4 hours ago

Has Anyone Tried The Oxygen Glasses? Are They Comfortable? Etc

Has Anyone Tried The Oxygen Glasses? Are They Comfortable? Etc

A myPHteam Member said:

Hi- they are eyeglasses with the oxygen tubing connected to the frame and the nose cannula go down the sides of nose instead of across your face

posted 26 days ago
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