Pulmonary Hypertension

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3 medium

Atrial septostomy

My grandson who is 7 has Pulmonary Arterial Hypertension and has had this done 1month ago. His doctor told us that they do this in children to stay ahead. Is this true?

posted 5 days ago
A myPHteam Member said:

i am so sad for the young to go through i hope you can help him

posted 4 days ago
8 medium

PH and pain

I have PH, I also have arthritis. Does PH in and of itself cause pain anywhere besides the chest area? I don't know if my arthritis is worsening or is it the PH? The bones below my shoulders hurt, my feet hurt, pretty much a lot of things hurt. I guess I should go back to the rheumatologist... Anyone else have just pain everywhere?

posted 6 days ago
A myPHteam Member said:

If you have a question about PH pain perhaps you should talk to your PH doctor. If you cant get in to see him/her then talk with their PA or nurses.… read more

posted 3 days ago
9 medium

Oxygen

I have too be on oxygen 16 hours a day does that mean I have too be on it 16 hours straight or can I do it in block sections

posted 14 days ago
3 medium

How is Pulmonary Hyper tension treated on a daily basis?

posted 20 days ago
A myPHteam Member said:

Thank you and God Bless you I feel I don't even qualify to be in the same room as you fine folks.

posted 4 days ago
1 medium

Medication

Hi guys I’m 19 years old with mild ph pressure of 40. I have taken adcirca it made me pass out, I’m currently on opsumit been on for 1 week and feels like breathing is not getting any better, maybe it’s too soon but my body reacts to medicine quick. I have group 1 PAH due to CHD that got closed. I also run low blood pressure so the medication is sometimes hard to find. Does anyone know or recommend any medication that I can ask my doc?? I see a lot of medication drops blood pressure and cause… read more

posted 23 days ago
A myPHteam Member said:

No I’m ok

posted 3 days ago
0 medium

Any nail technicians on here did you stop working as you were diagnosed do chemicals make you feel worse

posted about 1 month ago
A myPHteam Member said:

Thank you very helpful have a great day breathe easy

posted 23 days ago
1 medium

Pregnancy?

Pregnancy?

posted about 1 month ago
A myPHteam Member said:

As far as I know, women are supposed to use at least three kinds of birth control to prevent pregnancy while taking PH medication. It causes birth… read more

posted 23 days ago
0 medium

Do other people with Pulmonary Hypertension experience feelings of isolation especially during the holidays?

I've been blessed with some improvements in my health but still find myself fatigued quite often especially at times when I want to be more active. I know the COPD and accompanying PH won't go away. I know they will probably get worse. I'm slower than I was, more SOB than I was, but I'm still trying to function without slowing my family and friends down. It is at those times when I feel "left behing" and… read more

posted about 1 month ago
A myPHteam Member said:

See your doctor tell them how you feeling might offer some things to help you best wishes

posted 29 days ago
1 medium

Has anyone took or heard of opsumit medication? If so, how is it?

posted about 1 month ago
A myPHteam Member said:

I've been taking that and flolan for yrs. Opsumit for about 8 yrs. Flolan 20 yrs. Now my drug company is taking it off formulary. That means they won't… read more

posted 3 days ago
4 medium

Suggestions on strenthing respiratory for medical treatment of the heart?

I recently had two heart and right sided caths. Both times the first cath on oxygen pulse oximeter went down to 71 even on a bpap machine. The second week I was on my cpap machine with oxygen and the pulse oximeter went down in the 60's. I have 70% blockage in one artery but they can not get the clot to break up. They can not do bypass because of the respiration issues and the PH.. Does anyone have any suggestions on how to improve my… read more

posted about 2 months ago
A myPHteam Member said:

thanks i will try these.

posted 5 days ago
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