Pulmonary Hypertension

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My 4year old grandson has had ph since birth will he out grow it?

My 4year old grandson has had ph since birth will he out grow it?

He's had to be in the NICU first 2 weeks of his life and hospitalization several times life threatening they said next one could kill him

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A myPHteam Member said:

So sorry he has had such a struggle at such a young age. I will keep him and your family in my prayers. May the Lord watch over you and give you… read more

posted 1 day ago
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does ph slow me down and make me impatience since I am caregiver to my husband who has a lil dementia but lots of health issues

does ph slow me down and make me impatience since I am caregiver to my husband who has a lil dementia but lots of health issues

now that I am 75 and being Irsih and lil Indian find it difficult to slow down and still take care of my husband and myself as of lately we have had a lot of issues with owning our house but find it small and manageible, however my husband has had a rough year blood clots and failing health find myself losing my patience but wonder if the PH is also a part of my problem

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A myPHteam Member said:

posted 19 days ago
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I was diagnosed with PH in November 2018 my doctor said it is not bad enough to treat

I was diagnosed with PH in November 2018 my doctor said it is not bad enough to treat

I was diagnosed with pulmonary hypertension November 2018 in the ER. This was a new diagnosis as stated on my ER papers. My pulmonary doctor said he know about it. When I last saw him in April he said he was going to do another CT in a year and go from there that is to check some nodules that I have. He said oh your PH isn't that enough to treat I am on oxygen 24/7 2L at rest 3L when active. Everything I read says the earlier… read more

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A myPHteam Member said:

I found mine on what's called my chart it's where I get on my results of my blood test and other tests and doctors summaries etc. and then I went into… read more

posted 3 days ago
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Oxygen

Oxygen

What are the oxygen counts that one should be aware of. . When is it to low? At what numbers?

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A myPHteam Member said:

Should never be below 94

posted 15 days ago
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Back pain what working for others beside anto biotics

Back pain what working for others beside anto biotics

anyone know what helps back pain?I been using anti biotics that I purchased in mexico lasy winter but seems a few days after the pain is back and cannot sleep even moving walking makes it worst.My lung Dr really do nothing for me same as family dr.i hate being low on 02 should wear the tubing but i onky do at night.dies me out too but just a hassle to wear really but anyone know any better ideas i love to hear them.

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A myPHteam Member said:

If your not getting the care you feel you need, find another doc.

posted 15 days ago
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Raising arms above your head

Raising arms above your head

I have read here that you shouldn.t raise your arms above your head, but no one said how far. Can I get dishes from the cupboard.?I am relatively new to PH and CHF, still learning all the ins and outs

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A myPHteam Member said:

MarionChappell. I hope and pray the pain gets better

posted 21 days ago
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My Pulmomologist said I have PH and has not given me anything to help with symptoms.

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work.
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my… read more

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A myPHteam Member said:

My Oh My, A long list to address. Sit down to do anything below your waist. When you bend over .... you are basically pushing the air out of your lungs.… read more

posted 26 days ago
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SOB

SOB

My kidney doctor said being overweight could cause this Pulmonary Hypertension

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A myPHteam Member said:

Bahhahahaha

posted 27 days ago
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Thoughts?

Thoughts?

I have a very hard time with meds to the point of my life of quality is more important than quantity of time. Medication is not going good.
I strongly believe in the power of God and believe that He is what has sustained me this far.
I’m open to more natural things.
Everyone has an opinion, this is just mine.
Just sharing my thoughts and not bashing anyone that thinks different.

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A myPHteam Member said:

Goodness Jude that's a heap of pills. At my worst I was taking 21 and thought that was bad. Now I'm down to15 including 6 paracetemol. In Oz it's winter… read more

posted 26 days ago
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