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Pulmonary Hypertension

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Has Anyone Had A RHC W/exercise?

Has Anyone Had A RHC W/exercise?

I’m scheduled for this Thursday my main problem is with walking, showering, etc. At rest I’m fine, my o2 does really drop when sleeping but as long as I use my oxygen it’s stable.
They just mentioned riding a bike, and I’m wondering if that will be enough to get a good idea of what happens when I walk? The last time I had a 6 minute walk test I didn’t make it far at all w/o oxygen.

A myPHteam Member said:

I sure will.

posted 1 day ago

Does Anyone Else Experience Chest Pains?

Does Anyone Else Experience Chest Pains?

I have discussed this with my doctor and he don't think its related to the pulmonary arterial hypertension. I was just wondering what others thought and what steps you have taken.

A myPHteam Member said:

I have what feels like angina at times. I did have to have a stent in my LAD last year, I don’t really notice any difference.

posted 1 day ago

What Can I Take For This Horrible Cough?

What Can I Take For This Horrible Cough?

A myPHteam Member said:

Are you on lisinipril? It will make you cough. They say pineapple juice is the best for cough.

posted 1 day ago

What Was The Right Heart Catheraztion Like?

What Was The Right Heart Catheraztion Like?

I'm terrified to do it. Do they put you to sleep? Can you feel it? Are you left with a wound? A scar? How soon do you get result? TIA

A myPHteam Member said:

Like Gwen said, Prayers first!
You will be f, anything new can be stressful and that's ok to be little nervous. In most cases the medical staff goes… read more

posted 2 days ago

Financial Aid For Those New To Medicare And Taking ALYQ And Ambrisentan

Financial Aid For Those New To Medicare And Taking ALYQ And Ambrisentan

Hello I've been taking ambrisentan and ALYQ for years now while on employer BC/BS insurance...
And I never had to pay more than $10 a month for each...
Now I am going on Medicare and I am very worried I will not me able to pay for either...
Any suggestions on how I could get financial aid ...

A myPHteam Member said:

Be your own advocate! Yes, I went on medicare last august 2020! I was signed up with TAF, The assistance Fund before and made sure to inform pharmacy to… read more

posted 2 days ago

Does Anyone Have Auto-immune Issue Causing PH?

Does Anyone Have Auto-immune Issue Causing PH?

I recently tested positive for scleroderma associated with my PAH. Does anyone use medication for this?

A myPHteam Member said:

My cardiologist feels a lot of mine is due to Sjourns an auto immune disease which can also cause scleroderma.

posted 1 day ago

Are You Taking Adcirca (Tadalafil) For PAH?

Are You Taking Adcirca (Tadalafil) For PAH?

Did it help? If yes, how long did it take to work, and what difference did you notice. Did you have any side effects?

A myPHteam Member said:

Just started taking Tadalafil, verdict is still out :) I'm also on Ambrisentan.

posted 10 days ago

How Do You Know What Stage Your Pah Is At

How Do You Know What Stage Your Pah Is At

I want to know how severe my pah is

A myPHteam Member said:

Pam. Thank you for your excellent post. You answered one of the most prevalent asked questions...So informative and helpful to all of us.....Again,… read more

posted about 1 month ago
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