Pulmonary Hypertension

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Who has multiple terminal diseases?

Who has multiple terminal diseases?

Has anyone else had their spouse them because of their illness?

A myPHteam Member said:

Mike sorry to hear that story. It is very sad indeed. Do you have other family members. It is difficult to be alone when unwell, especially with a bad… read more

posted about 22 hours ago

I have IPAH and COPD but not related(?)

I have IPAH and COPD but not related(?)

I was diagnosed with SLEEP APNEA and IPAH but dr says the sleep apnea did not cause my PAH
How can he be so sure when its the only thing they picked up ??

I have high bp am in the right group

I have high bp am in the right group

A myPHteam Member said:

We had great pain patches here in Ireland, Versatis, but the Dept of Health no longer provide them on the Medical Card. It's dreadful and they were so… read more

posted about 22 hours ago

Is anyone taking orenitram ?

Is anyone taking orenitram ?

A myPHteam Member said:

No I take opsumit (macitren) And Uptravi (selexipag)

posted 10 days ago

Where do I begin?? I am New

Where do I begin?? I am New

Can someone take me under there wing and help me learn how to use this. Newly diagnosed and scared and fragile!

A myPHteam Member said:

Well said!

posted 3 days ago

Is anyone having coughing fits ?

Is anyone having coughing fits ?

I have now started coughing so bad that my back is sore. is this normal with this disease ? I wonder if this means I am getting worse. I am on Opsumit and I have not been feeling any better. I am new to this page and I don't know how honest people can get on here. I am not one for sharing my troubles but I find it hard to talk to my husband about this. Am I getting worse ?

A myPHteam Member said:

Hi Jusy Hand, the cough is anywhere I go. It is not just at home. Most of the time I am not doing anything. It even eakes me up. Standing or sitting, in… read more

posted 14 days ago

Contact MyPH team

Contact MyPH team

Is there a way to do a blanket post for all of my PH team at the same time?

A myPHteam Member said:

Thanks Barbara!! I was looking for a chart!!

posted 28 days ago

Does anyone have sciatica problems. I sit so much of the day, that my butt really hurts and I have a difficult time standing/walking. x

Does anyone have sciatica problems. I sit so much of the day, that my butt really hurts and I have a difficult time standing/walking. x

I am unsteady when I walk and the only relief I get is when I lean over on my elbows. Recently my bursa sack in my right elbow ruptured and it got extremely infected. Had to have surgery twice to clean out all of the infection. Having a compromised immune system doesn't help in this type of situation. Does anyone know what I can do to help relieve this butt pain.

A myPHteam Member said:

Yes, I'm trying to do more things so that I don't sit all day. Added a cushion to my hair and that has helped. However, I tried to sweep my floors… read more

posted 3 days ago

Does anyone have CTEPH? If so how long have you had it?

Does anyone have CTEPH? If so how long have you had it?

A myPHteam Member said:

She should not have been rude, and when needed..you should get on your high horse, just be careful getting off. ;)
Seriously, thank you for giving her… read more

posted about 1 month ago
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