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Pulmonary Hypertension

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Is Anyone On Humana Medicare And How Does It Cover Tresprostinol And Opsumit?

Is Anyone On Humana Medicare And How Does It Cover Tresprostinol And Opsumit?

I will be eligible for Medicare in June 2022. I am meeting with a rep from Humana Medicare to discuss coverages. I would like to know how it covers Tresprostinol and Opsumit. I get both of these drugs for my PAH from Accredo Specialty Pharmacy.

A myPHteam Member said:

@A myPHteam Member I have Anthem BCBS

posted 1 day ago

Pulmonary Mean Pressure

Pulmonary Mean Pressure

I was tested for pulmonary hypertension and the mean pressure came to 26. Even though I fall into that category the doctor told me I don’t have pulmonary hypertension. What is your opinion?

A myPHteam Member said:

Don't give up! Advocate for yourself!

posted 4 days ago

What Are Treatment Options For Pulmonary Hypertension?

What Are Treatment Options For Pulmonary Hypertension?

What are the therapies for pulmonary hypertension? I only have C-Pap for sleep apnea.

A myPHteam Member said:

PH offers many varied symptoms. Dr.s Rx. for the individual person both tx.s &amp
meds. Re. tx.: SOB is one of the biggest symptoms & my dr. has explained that
the most important therapy is to faithfully… read more

posted 4 days ago

Weight Gain

Weight Gain

I am on a water restriction as I gain weight easlliy, am on a water pill but still am retaining fluid, what can I do to start losing weight, in the hospital they took 60 pounds off of me of fluids, dont want to go back there...any ideas as to what I should try

A myPHteam Member said:

yes, I too am on a fluid intake limit. and my sodium I am just learning to read labels on everything that has soduim. its a learning hell, makes me use my brain! I also, am taking a pulmonary class… read more

posted 12 days ago

Please Give Me Fluid Advice

Please Give Me Fluid Advice

Ideas to help with dry mouth and being thirsty all the time , because iam on fluid restrictions we already do shaved ice and popsicles any added help would be appreciated thank you

A myPHteam Member said:

There is a toothpaste and a mouth wash for dry mouth. Can you eat sugar free hard candy?

posted 4 days ago

Does Anybody Else Have Blue Nail Beds?

Does Anybody Else Have Blue Nail Beds?

Blue nail beds were one of the first indications that something was wrong with me. I developed shortness of breath so badly that people noticed it when I was on the phone with them. It wasn't until a doctor mentioned that I sounded awfully short of breath for just sitting there and I then showed her my blue nail beds that anybody took my condition seriously. I had shown all my doctors my blue nail beds and they all just shrugged their shoulders and said they didn't know why they were like… read more

A myPHteam Member said:

Hi do you have Rheumatoid arthritis by any chance?
I have Rh and Raynauds. The bloodwork doesnt always show positive for those issues. A Rheumy Dr will be able to help you.
Good luck..

posted 5 days ago

Does Anyone Have Chest Wall And Rib Pain

Does Anyone Have Chest Wall And Rib Pain

A myPHteam Member said:

Ok that’s good to know . So is that from the Pulmonary Hypertension .

posted 17 days ago
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