Pulmonary Hypertension

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So I am retaining fluid swollen everywhere. My doctor scared I am literally drowning myself. Gave me 24 hrs to get fluid off or go to er.

So I am retaining fluid swollen everywhere. My doctor scared I am literally drowning myself. Gave me 24 hrs to get fluid off or go to er.

So he doubled my lasix and I have been cathed since monday. Let's say 60 hours now and I have got off 10 liters of fluid. When do I know if I get to much off at one time? I am already feeling so tired and week. The swelling has gone done and I can now move my hands and feet.

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A myPHteam Member said:

Absolutely! Hugs and prayers Teri

posted 1 day ago
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What type of exercises do you do?

What type of exercises do you do?

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A myPHteam Member said:

Hi Dennypenny I have been thinking of you and prayers for you always! I sure hope you are doing ok my friend ??? Please let me know how you are!! Stay… read more

posted 3 days ago
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Spent some time outside this morning working came in started not feeling well.

Spent some time outside this morning working came in started not feeling well.

Went and took a nap woke up feeling awful my right eye is soar and is draining. And wobbly on my feet with a headache. Any ideas? I am already taking musinex and benadryl, took some dayquil but still feel awful and the elaphant has come to visit and has not moved even though I told him he was heavy. Lol

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A myPHteam Member said:

I am on oxygen 24/7. It was a rough night to my arms keep going numb and heavy.

posted 8 days ago
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I want to say thank you to everyone for their support that I have started using this site it has helped me to not feel alone.

I want to say thank you to everyone for their support that I have started using this site it has helped me to not feel alone.

But here is my actual question that I am hoping someone might be able to help me with. We had to move in with my uncle. On top of PH I am also allergic to cigarettes smoke and my uncle in law smokes so I am confined to my room. He is willing to quit with help but no insurance and I no there are free programs to help if anyone knows any of them can they help me. Thank you

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A myPHteam Member said:

Making him go outside is the best!! When I first quit my family all smokes but they all go outside. Works so much better don’t have to worry about walls… read more

posted 5 days ago
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I don’t understand PH. My husband had a liver transplant 7/16

I don’t understand PH. My husband had a liver transplant 7/16

Never had pressure before transplant. His pressure is 45 in right ventricle. I can explain all about transplant don’t understand PH. Thank you Susan Bleacher

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Is any out of breath with stress

Is any out of breath with stress

When I babysit my grandbabies,I get so worked up and worn out that I can't catch my breath and I get irritated quickly does anyone else go through this?

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A myPHteam Member said:

same here PatriciaFunkePierce. watched them from infancy and now I just mss them so much. we talk on phone all the time and my son brings them to see… read more

posted 13 days ago
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Why such a struggle to lose weight even on a strict meal plan?

Why such a struggle to lose weight even on a strict meal plan?

I’ve lost 65lbs since diagnosed with PAH. But since December, it’s been impossible to lose more. It’s up and down though sticking to plan. I take furosemide 3 days a week too. Very frustrating.

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A myPHteam Member said:

wow sharonsuesmith
you lost 65 ibs that is HUGE so huge I can not say enough about this and if you were me Sharonsuesmith that 65 ilbs well you be done… read more

posted 15 days ago
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How is your living arrangements for singles who are 40

How is your living arrangements for singles who are 40

I wonder if anyone who has pulmonary hypertension has been able to meet with others who are just as well wanting to have friendship's.

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A myPHteam Member said:

I was wondering the same thing. I would really like to meet someone with the same condition for support and maybe I could help someone

posted 5 days ago
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Exercise

Exercise

As a breast and bowel cancer survivor with AF and now PH I attend an hour long session each Friday ensuring that I exercise for the duration mainly concentrating on my legs. Recently Iwas diagnosed with Tendinosis in my hip. Would the exercise be responsible?

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A myPHteam Member said:

It's hard to do on oxygen. Any little bit you can do is a plus.

posted 18 days ago
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about stages of copd

about stages of copd

how can you tell what stage of copd you are in

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A myPHteam Member said:

Ask your doctor I agree

posted about 1 month ago
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