Why, if I could ask? I thot I took that was younger. Not sure now..looked up. Anyway, these meds help you with symptoms now and help prevent or slow… read more
Does anyone else have extreme dizzyness on standing and walking. Mine disappears if I lay done flat. I have stage 4 emphasema a blood clotting problem which is hereditary I take eliquis for that and trelegy for my emphasema.
Just doing my stair steps takes my breathe away but then some days i can do alot more. Is this normal for ph? And what happens to cause this?
I was diagnosed with PAH that is actually genetic. I have a mutated gene.
Since being diagnosed with PH a little over a year ago I find myself constantly tired and almost always short of breath, even when doing simple things like tying my shoes, climbing stairs getting out of a chair short walks among other things. Sometimes I even feel short of breath when just sitting at my office? Once I started using my CPAP machine, it seemed to help, but now that I've been using it for almost a year, it doesn't seem to be making much of a… read more
Does anyone else experience severe, excruciating pain every single time they stand up? It is followed by severe shortness of breath. Nitroglycerine does not help it. The pain is in my upper diaphragm, just slightly below the breast line, which I've been told is still considered chest pain?
Yeah, you have to get to that specialist. :)
Has anyone been on or is participating in a clinical trial for PAH? If so, did they work well for you?
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