Questions & Answers
Get practical advice and insights from people who understand
I'm Venting Here And Not Looking For Sympathy.
I'm Venting Here And Not Looking For Sympathy.
So yeah I get it I have this terminal disease and its progressive and I end up suffocating.
I have had major anxiety problems my entire life and I don't know what to do with the time left.
Has Anyone Had Pulmonary Rehab? Did It Help?
Has Anyone Had Pulmonary Rehab? Did It Help?
Are There Breathing Exercises That Any Of You Recommend?
Are There Breathing Exercises That Any Of You Recommend?
Pearly❤️
A lot of people swear by Pursed Lip breathing and 😍 love it. Give it a try‼️ Good luck sweetie pie❤️🌲❤️🌲
“ Sniff the 🌹… read more
Does Anyone Struggle With Weight Gain? Any Tips (besides The Obvious Of Eating More)? How Do You Stay On Top Of Your Weight Gain Goal?
Does Anyone Struggle With Weight Gain? Any Tips (besides The Obvious Of Eating More)? How Do You Stay On Top Of Your Weight Gain Goal?
Looking for an accountability partner… I’ve struggled with weight gain all my life… stress often gets in the way and I lose track
Heart Pounding
Heart Pounding
over the past 6 days or so I've noticed my heart beating hard. It last 1 to 15 minutes and goes on and off throughout the day. It didn't do this while I was exercising yesterday, only at rest or standing in the kitchen working on stuff. I have no Ph symptoms yet and don't find heart beating hard as one. It's not beating fast just hard enough to definitely notice my chest is beating. I do have appointment to see my primary tomorrow and it's on my list of questions.
Any ideas?
Mary
Mary669: Have you been dx. with A Fib = Atrial Fibralation ?? I ask because that is an irregular heartbeat and many of us with PH do have it. The interesting thing is all the females in my family… read more
Hearing Difficult
Hearing Difficult
Started with ringing left ear- keepin me up last few nights
Been taking meds for sinus trouble last 8 weeks as well but last week up to different level. Hearing affected in last week - pulsating and tunnel like.
I take Taladafil and Opsumit for PAH ( Scleraderma
Limited induced) my PAH is mild w exertional sob.
PAH dx in Jan/2022- started on meds in February.
Any thoughts?
Have to call dr’s…and get sinus vs PAH med insigght…
Hearing Difficult
Hearing Difficult
Started with ringing left ear- keepin me up last few nights
Been taking meds for sinus trouble last 8 weeks as well but last week up to different level. Hearing affected in last week - pulsating and tunnel like.
I take Taladafil and Opsumit for PAH ( Scleraderma
Limited induced) my PAH is mild w exertional sob.
PAH dx in Jan/2022- started on meds in February.
Any thoughts?
Have to call dr’s…and get sinus vs PAH med insigght…
