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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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I Have Weeping Legs With Boils Occasionally Which Seems To Be Getting Worse. Any Suggestions For Treatment And Maintenance?
A myPHteam Member asked a question 💭
posted 10 hours ago
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A myPHteam Member

I had the same thing. My legs are finally starting to heal. I am also diabetic and have had a few DVT'S so my circulation is not very good especially in my legs. Usually the weeping and blisters are… read more

posted 9 hours ago
Blood Pressure Medication And Sildenafil
A myPHteam Member asked a question 💭

Was wondering if anyone has to change their blood pressure medication due to pulmonary hypertension. My shortness of breath seems tobe worse with my blood pressure meds.

posted 2 days ago
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A myPHteam Member

Sorry my blood pressure is sometimes low so I have no recommendation

posted 2 days ago
Has Anyone's Doctor Brought Up A Lung Transplant To Them? I Had Two Doctors Bring It Up Last Week.
A myPHteam Member asked a question 💭
posted 3 days ago
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A myPHteam Member

I'm doin good. As for the transplant I guess it just depends how the recipient feels about the procedure. Myself, I just don't feel like going thru the process. I've watch a video of the actual… read more

posted 18 hours ago
Family Understands The Difference
A myPHteam Member asked a question 💭

Does anyone have someone in their family that understands that a person who has COPD and trouble breathing at that moment is different when u lose your breath for Amin there is a difference & cannot respond the same way?

posted 3 days ago
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I Am In The Process Of Approval For Pulmonary Endarterectomy In The Summer. Anyone Have This Surgery Or Know Someone Who Has Had It?
A myPHteam Member asked a question 💭

I know it is rare but according too my docs my life expectancy without it is around 2 years so I really don't have a choice. Yes I have gotten 2nd and 3rd opinions. I know what the surgery entails and I trust my docs, just kinda wanting to know from personal experience. Thanks bunches

posted 3 days ago
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A myPHteam Member

Trust in God Wanda, and follow what he says. God Bless You

posted 2 days ago
Hi, Has Anybody Tried Alternative Medication, Like Homeopathy Or Any Other Such Therapy?
A myPHteam Member asked a question 💭
posted 5 days ago
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A myPHteam Member

I’ve started magnesium 400 mg a day and ut has really helped with leg cramps I had at night. But, check with your Dr first.

posted 5 days ago
My Wife Has Started Tadalafil Last Friday
A myPHteam Member asked a question 💭

So my wife is having back and leg cramps all the time has anyone else experienced these symptoms and if so what did you do to ease the cramps and pain, but the good news is she has had to do no oxygen since she started tadalifil and her o2 levels have been up in the 90 and hasn't dropped!!!???

posted 5 days ago
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A myPHteam Member

I've been taking magnesium for several years.The Dr . prescribed for me .Took awhile but no walking at nite, anymore didn't really help.But kept my mind off of it

posted 3 days ago
Who Is On A C-pap Machine. I Was But Stopped As I Just Did Not Ever Get Adjusted To Using It!
A myPHteam Member asked a question 💭

Does it really help? I sometimes felt I was not getting enough air.

posted 7 days ago
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A myPHteam Member

I used C-Pap for almost 10 years for severe OSA. I became very ill in 2021 and was moved to a Trilogy EVO (external ventilator). I wouldn't want to have to live without it. I have been on oxygen for… read more

posted 10 hours ago
I Am Wondering How Well Others With Severe PAH I'm Managing The Disease On Remodulin?
A myPHteam Member asked a question 💭
posted 7 days ago
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A myPHteam Member

I have CaddMs3 for over a year now. I started with the one that comes out ur chest and it was just too much for me so I now have the one that looks very similar to a pager. It is definitely a life… read more

posted 19 hours ago
Anyone Hearing About New Drug Trials?
A myPHteam Member asked a question 💭

Hello my PAH family has anyone heard of new clinical trials coming out that may have the ability to cure this disease? My Drs are at university of anschutz in Denver Co and they have mentioned this To me but no dates or names of drugs yet have any of you been in clinical trials before I pray I am approved to try something new I'm currently on remodulin via pump tadalifl and opsumit when I was diagnosed the hospital thought I wasn't going to pull through after finally being approved for the remodread more

posted March 14
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A myPHteam Member

I will most definitely keep everyone on her updated whenever my team lets me know more information I'll pass it onto everyone on here!!!🙂

posted 7 days ago
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