Pulmonary Hypertension

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Would you believe I forget what my question was . ??

Would you believe I forget what my question was . ??

A myPHteam Member said:

Sharon if you temember your question let me know what it was. Have a good day and. breathe on.!!!

posted about 11 hours ago

Does anyone else have your legs discoloring red and bumpy like ?

Does anyone else have your legs discoloring red and bumpy like ?

It first started in right leg and now is starting in left . dr says its from the PAH ???

A myPHteam Member said:

Hi Michael....your leg looks ulcerated....has your doctor seen this? is he the one who told you what to put on it...Is the sock that you wear letting in… read more

posted 3 days ago

How do you deal with this extreme fatigue?

How do you deal with this extreme fatigue?

I have been diagnosed with Scleroderma and am not sure if I have pulmonary problems. I usually work out on a stationery bike for 1/2 hour, 3x a week. On those days I can’t do anything else. Most other days, I can do one thing a day, such as laundry, vacuuming, etc. I’m asleep by 2 pm and seldom am able to visit with friends. I am grateful to be alive and still work on my calligraphy which helps calm me down. Has anyone explored other avenues that might be causing the… read more

A myPHteam Member said:

Thank you so much. All your information will be helpful when I talk with my doctor. Enjoy your day. You sound like you have a great positive attitude.

posted 1 day ago

Can PHD be cured or healed?

Can PHD be cured or healed?

A myPHteam Member said:

just like pulmonary fibrosis...no cure....am on esbriet to slow down the scarring...on my 6th week of meds....now have a head cold..one of the side… read more

posted 4 days ago

Remodulin

Remodulin

What helps with the sight pain? I had pain for two weeks. Tried norco, topical creams cannabis pain crean

A myPHteam Member said:

sometimes meds can cause eye problems..read the side effects..then let your doc know...he might lower your meds or change to another one...

posted 2 days ago

Tyvaso

Tyvaso

Hello..I read the article about tyvaso....and the scarring...would it help with the scarring of interstial pulmonary fibroisis? my doctor started me on esbriet...

A myPHteam Member said:

Im not sure but you can as your doctor or pulmonary maybe they can answer good luck

posted about 1 month ago

Who has multiple terminal diseases?

Who has multiple terminal diseases?

Has anyone else had their spouse them because of their illness?

A myPHteam Member said:

Yes I go to web MD often. Have a great day

posted about 1 month ago
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