I have been on subq Remodulin for almost 14mos. I do not retain fluid, I weight 110lbs. Due to not having a lot of body fat I have more site pain than most. My question is my sites can be on my left side and they do not hurt as long as the sites on my right side. Does anyone know why this might be? Also when my sites are on my right side they do not last as long. Any suggestions as why?
I wanted to go back and read some of the articles but do not know how to get back to them.
I was finay diagnosed with PH four months after it showed its ugly head when the pulseox would not go over 87 after rotator cuff surgery in October 2017. It was not actually diagnosed until I had a heart attack the end of January 2018 even though I had been on oxygen 100% of the time since October 5th. The first meeting with my pulmonologist he referred me to a specialist team… read more
I have PH and also COPD, ILD and rheumatoid arthritis. I am on Letairis for the PH, Spiriva and Breo for lungs and Celebrex for arthritis. All along I have assumed that the SOB when exerting myself too much, or bending over, is from lung issues and the pounding heart is the PH, but could ALL of these symptoms be PH? I'm on 3 liters O2 for exercising and 2 at night. How can I know what meds are working for what problem? I've got checkups with heart and lung docs at the end of May… read more
In 2013, when I was diagnosed my bp was thru the roof after the left heart Cath, I immediately was prescribed sidenifil (I now take 3 - 3times a day) last week Kaiser has me redoing all the normal tests to evaluate my severity. With the 6min walk test I passed with flying colors 98% oxgyen super exciting for me since the one I did last year I got dizzy and had to stop & take a 5sec break and restart. My BP is 130/75 consistently. I feel good more than bad lately, I used to pass out or… read more
Has anyone noticed that when they have trouble breathing their abdomen swells too? After the lung cramp episode on Sunday, I've noticed a fullness or bloated feeling in my stomach. I'm not sure if I'm describing it well, but my stomach is ballooned and taut to the touch
What is the treatment for the PH and can you also have COPD with the PH ?? I was told I have both. And now suppose to be on oxygen 24/7. I can not return to the job I had and use oxygen. I need to work to support my self.