Pulmonary Hypertension

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6 medium

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work.
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my… read more

6 mini
A myPHteam Member said:

Thank you. Some fluid in the lungs but they are not calling it COPD. I never smoked in my life but I worked in Bars and nightclubs for 20 years in the… read more

posted about 11 hours ago
0 medium

SOB

SOB

My kidney doctor said being overweight could cause this Pulmonary Hypertension

5 mini
A myPHteam Member said:

Well it's been almost four years and I am not receiving my disability

posted 2 days ago
2 medium

Thoughts?

Thoughts?

I have a very hard time with meds to the point of my life of quality is more important than quantity of time. Medication is not going good.
I strongly believe in the power of God and believe that He is what has sustained me this far.
I’m open to more natural things.
Everyone has an opinion, this is just mine.
Just sharing my thoughts and not bashing anyone that thinks different.

1 mini
A myPHteam Member said:

Me too!

posted about 8 hours ago
1 medium

Bronchitis and it’s affect on pulmonary hypertension!

Bronchitis and it’s affect on pulmonary hypertension!

Have severe coughing and mucus..oxygen level down..is this affecting PH!

5 mini
A myPHteam Member said:

Yes it is you need a breathing treatment I had it last year it was bad my O2 went to 75%and I turned grey they gave me a treatment and with in 10… read more

posted 11 days ago
7 medium

I have severe emphysema. Use oxygen. Woke up dizzy this AM. Anyone have ideas why I am dizzy ?

I have severe emphysema. Use oxygen. Woke up dizzy this AM. Anyone have ideas why I am dizzy ?

9 mini
A myPHteam Member said:

What have your O2 sat's been running to start with? You should always ask n know. Ask your Pulmonologist and see what they say. Judy

posted 15 days ago
2 medium

Has anyone had Stem Cell Treatment for COPD?

Has anyone had Stem Cell Treatment for COPD?

I am planning to have stem cell therapy by the end of this year and am hoping I have chosen the best place to go for my procedure. Treatment in the United States does not allow for manipulation of the cells so you can only get allografts here. Meaning they can't separate the cells and make them stronger or make them multiply. I have done a lot of research and plan to have my procedure done in Jamaica. They will get the cells from a donated Umbilical Cord where the… read more

9 mini
A myPHteam Member said:

Do anyone know the name of this place or one in jamaica as would like to look into this I have terrible breathing I sure like to see if rthey could fix… read more

posted 5 days ago
8 medium

Heart & Lung Probs-Does Anyone Have Nightmares?

Heart & Lung Probs-Does Anyone Have Nightmares?

I'll be 60 this year. Had first heart attack at 34 and have had six more since. Several stents and one triple bypass. This past winter ended up with pnuemonia and hospitalization three times over three months. Doc shows I have only 50% usage of my left lung (and has not given me a reason why or what caused it--it's been over six months now). Each heart attack and each pulmonary trip to the hospital have scared me so bad I literally thought I was going to die--each… read more

7 mini
A myPHteam Member said:

I don't have nightmares...… but I do go to sleep worried (panicked) about waking up in a exacerbation. It seems that I have one every few months and… read more

posted 6 days ago
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