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Pulmonary Hypertension

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Has Anyone Tried To Get In Swimming Pool For Exercise?

Has Anyone Tried To Get In Swimming Pool For Exercise?

Yes I have had ph for over 3 years now, can not really do nothing because of it and other health issues, but I got in pool with my big o hat and just walked around and I could not believe I was ok.It is like when my body cooled down to water temp I felt good.

A myPHteam Member said:

I have found that water aerobics are something I can do and I love it. Haven’t been able to get there with COVID, it’s open but think I better not go… read more

posted about 3 hours ago

I Can't Walk 30 Or 40 Feet Without Losing My Breath And Struggle To Get It Back.

I Can't Walk 30 Or 40 Feet Without Losing My Breath And Struggle To Get It Back.

I am changing Cardiologist because mine doesn't even check my blood pressure. Is anyone on any medication to help their breathing.
Jim Ricker
(Email address can only be seen by myPHteam users)

A myPHteam Member said:

I also take 10 mg. of Amberstan once a day and 2.5 mg. of Adempas, three times a day. I'm also on 2 liters of oxygen 24/7. In addition to my pulmonary… read more

posted 1 day ago

What Does It Mean When You Pee Blood And Chunks And Urine Smeels

What Does It Mean When You Pee Blood And Chunks And Urine Smeels

A myPHteam Member said:

I would strongly suggest that if this is happening to you, to contact your doctor as soon as possible. This is not normal and it is best to find out… read more

posted 12 days ago

Balloon Pulmonary Angioplasty

Balloon Pulmonary Angioplasty

Has anyone with CTEPH undergone a balloon pulmonary angioplasty? I will be the first patient at the Mayo Clinic Jacksonville Florida and I am wondering what to expect if someone else has had this procedure.

A myPHteam Member said:

I've been wondering if they can do that just to enlarge the arteries that don't have blood clots to help improve breathing? I may talk to my… read more

posted 1 day ago

Does Anyone Have Hep C ?

Does Anyone Have Hep C ?

I was diagnosed with two new disorders after the oranetram pill form remodulin was not working. I also blame an iud. However I was switched last Halloween to a PICC line and infusion remodulin which works. However I was diagnosed with Hep C and ITP which is making me feel very concerned as I have been on Prednisone. That I knew that wasn't working. So I was on a chemo infusion of reflluxin and it is giving as an infusion however it is not chemo but a biotherapy. For four weeks and… read more

A myPHteam Member said:

With a seizure..bad headache,blood clot in my chest and knee down to my tackle. C[died blue, then when n\are pumped me back to life, my body would not… read more

posted 28 days ago

Swelling In Feet And Legs With Diastolic Heart Failure.

Swelling In Feet And Legs With Diastolic Heart Failure.

have learned to take one day at a time and to never give up. At the present time I am also having diastolic heart failure with fluid build up in my legs and feet. I have been in the hospital and within two days of release the fluid came right back. Does anyone have any recommendations? I watch salt and curb fluids.

A myPHteam Member said:

We got the fluid down but then I went into kidney failure. It is a vicious cycle between fluid building up and having heart failure and getting it down… read more

posted 7 days ago

Does Anyone Use A Respirator Trainer?

Does Anyone Use A Respirator Trainer?

I was wondering if respiratory trainers are helpful because I need help with my breathing but I can't go to pulmonary rehab so I'm looking for something I can do at home.

A myPHteam Member said:

I bet they are like a pulmonary therapist in rehab once you learn how to breathe it will help you so much and take it from someone who knows never stop… read more

posted 15 days ago

Just Wondering Has Anyone Been On Infusions For Pah If So How Did It Work For You ?

Just Wondering Has Anyone Been On Infusions For Pah If So How Did It Work For You ?

A myPHteam Member said:

Went to my new pulmonary doctor today and found out I was misdiagnosed with copd
I do have pulmonary hypertension but at least I only have to worry… read more

posted 29 days ago

I Hear Some Medications Aren't As Good As Others. What About HCTZ?

I Hear Some Medications Aren't As Good As Others. What About HCTZ?

I have heard Lisinopril isn't as good as other meds. I wondering about HCTZ because it has Lisinopril in it. I have been taking HCTZ for about 5 years. Can you tell us a little about the meds?

A myPHteam Member said:

Lisinopril can be deadly I was in ICU for 20 days

posted about 1 month ago
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