Pulmonary Hypertension

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9 medium

Heart-lung transplant

I am on 10 liters of oxygen...is anyone on that amount.

posted 11 days ago by A myPHteam User

I can not imagine Hugs for you

posted 5 days ago
4 medium

Has anyone experienced their PH symptoms getting worse after starting CPAP therapy with oxygen?

I have been on a CPAP machine every night for over a month and I am getting more dizzyness, headaches, even less energy and looking very tired and not well. I am not able to walk as far as I use to. Just going into the hospital or grocery store I have to either ask for a volunteer to take me via wheel chair to my husbands room and than when leaving back out to the car. Even getting the closest parking space I can to a… read more

posted 11 days ago by A myPHteam User

Enrid I am curious how did the visit with your pulmonologist go? I hope it went well and positive for you. Glad to have you participate.

posted 7 days ago
8 medium

Looking for portable oxgyen concentrator good ones

I'm considering Inogen g3 unit 2018 new intelligence. . Any feedback? Thanks

posted 14 days ago by A myPHteam User

Very encouraging. At what level -flow. Do u usually use??

posted 9 days ago
6 medium

Chest pain

Please describe your chest pain associated with PAH.
How it comes and goes?
How much time it takes to lost?
Where exactly it occures?
And other related information please......

posted 16 days ago by A myPHteam User

Sometimes I take nitro, sometimes I don't.

posted 16 days ago
3 medium

Does anyone have the Oxygo Portable machine?

I have the Oxygofit right now. At home i am on 4 ltrs and feel fine. But the oxygo fit only goes to 3 ltrs which is starting to limit my activites. Lincare stated the Oxygo battery only lasts 1 hr but the information on the internet states the battery lasts 2 hours on 4 ltrs. Does anyone have the Oxygo and can tell the their experience using the machine. Lincare stated I can only use tanks from this point forward.

posted 20 days ago by A myPHteam User

Thank you, that helps alot.

posted 19 days ago
4 medium

Did anyone go to the PH conference over the last two days? What was the highlight of the conference?

Will the highlights,new treatments and any information given at the conference be available for those of us who were unable to attend?

posted 21 days ago by A myPHteam User

Ive had to change what i eat after this last stroke, otherwise no coughing. Rice seems to form a dam, so no more of that.

posted 11 days ago
2 medium

Need dome feedback on vague test results

On 6/1 had several diagnostic tests. A nuclear stress test. And i believe a scan right after and about 3 hrs later. Also had echocardiogram and EKG. Result..told everything looked fine, have a valve reguritation.not sure what valve and some blockage in carotid arteries. But want to wait to put a stent in. No mention of treatment for valve reguritation. Only they want to see me in a year. To me this is scary. Im 72 and dont want to have a stroke or HA before anything is… read more

posted about 1 month ago by A myPHteam User

You need to have a Right and Left heart cath to evaluate your cardiac pressures for positive diagnosis of Pulmonary Hypertension. If the pressure are… read more

posted 14 days ago
6 medium

Symtoms

Hi plz let me know what is your main symptoms? How much time it takes? Your mPAP?

I have slight chest pain on my left side near to arm and having episodic extra beats.
Im not sure am I ph pationt or not because my 1st echo showed mPAP = 30 mmHg and ladt echo showed sPAP (not mPAP)= 30 mmHg. I currently have no other symptoms. No one is taking me serious. Plz help me im very depressed

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posted about 2 months ago by A myPHteam User

it took at least 8 years to find out what was really happening to me. One of the main symptoms were chest pain, shortness of breath, fatigue, unable to… read more

posted about 1 month ago
3 medium

Has anyone had a lung transplant at Duke or the Cleveland Clinic?

posted about 2 months ago by A myPHteam User

I knew a lady who done a double lung transplant at Cleveland. She did really good.

posted 13 days ago
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