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Yes I have had ph for over 3 years now, can not really do nothing because of it and other health issues, but I got in pool with my big o hat and just walked around and I could not believe I was ok.It is like when my body cooled down to water temp I felt good.
Has anyone with CTEPH undergone a balloon pulmonary angioplasty? I will be the first patient at the Mayo Clinic Jacksonville Florida and I am wondering what to expect if someone else has had this procedure.
I was diagnosed with two new disorders after the oranetram pill form remodulin was not working. I also blame an iud. However I was switched last Halloween to a PICC line and infusion remodulin which works. However I was diagnosed with Hep C and ITP which is making me feel very concerned as I have been on Prednisone. That I knew that wasn't working. So I was on a chemo infusion of reflluxin and it is giving as an infusion however it is not chemo but a biotherapy. For four weeks and… read more
have learned to take one day at a time and to never give up. At the present time I am also having diastolic heart failure with fluid build up in my legs and feet. I have been in the hospital and within two days of release the fluid came right back. Does anyone have any recommendations? I watch salt and curb fluids.