Pulmonary Hypertension

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9 medium

shortness of breath

I was at the Pulmonologist the other day, he said my lungs sound good, etc. Then if my lungs are doing good, how come I am so short of breath? He started to say, don't forget about pulmonary hypertension, your heart doesn't and then he stopped. What does PH mean or do to your.heart? Would really appreciate an answer. The shortness of breath is very scary.

posted 20 days ago
A myPHteam Member said:

My goodness you really have had a struggle, but I like your attitude. I was just diagnosed last week.

posted 19 days ago
4 medium

I was having a stabbing knife feeling in my small intestine area and found a cure. Anyone else haveing these pains?

After doing some research these pains are related to PH. My PH team said its not part of PH. I did my own research and found three articles referencing this. A recent study done on lab rats in Spain and another more detailedwrite up as well as an article from about 6 years ago stating this was an effect of PH. So the cure to getting rid of this side effect is to increase your probiotics. Start eating… read more

posted about 1 month ago
A myPHteam Member said:

What???

posted 5 days ago
7 medium

Iloprost

anyone on iv iloprost. What are some of the side effects. My daughter has lost a lot of weight, loss of appetite and vomiting. She initially was doing ok - after a few months, lost a lot of weight and feels extremely tired.

posted about 2 months ago
A myPHteam Member said:

In sorry

posted about 2 months ago
9 medium

Heart-lung transplant

I am on 10 liters of oxygen...is anyone on that amount.

posted 2 months ago
A myPHteam Member said:

Om 5 liters they tell me CAN'T have.any surgeries or gastro scope or endoscopy because might have to have to be left on a breathing machine. Soon after… read more

posted 6 days ago
4 medium

Has anyone experienced their PH symptoms getting worse after starting CPAP therapy with oxygen?

I have been on a CPAP machine every night for over a month and I am getting more dizzyness, headaches, even less energy and looking very tired and not well. I am not able to walk as far as I use to. Just going into the hospital or grocery store I have to either ask for a volunteer to take me via wheel chair to my husbands room and than when leaving back out to the car. Even getting the closest parking space I can to a… read more

posted 2 months ago
A myPHteam Member said:

I dont see a difference

posted 6 days ago
8 medium

Looking for portable oxgyen concentrator good ones

I'm considering Inogen g3 unit 2018 new intelligence. . Any feedback? Thanks

posted 2 months ago
A myPHteam Member said:

Thanks for your response. I think that medicare/medicade now can assist in securing too
Peace

posted 6 days ago
6 medium

Chest pain

Please describe your chest pain associated with PAH.
How it comes and goes?
How much time it takes to lost?
Where exactly it occures?
And other related information please......

posted 3 months ago
A myPHteam Member said:

Sometimes I take nitro, sometimes I don't.

posted 3 months ago
3 medium

Does anyone have the Oxygo Portable machine?

I have the Oxygofit right now. At home i am on 4 ltrs and feel fine. But the oxygo fit only goes to 3 ltrs which is starting to limit my activites. Lincare stated the Oxygo battery only lasts 1 hr but the information on the internet states the battery lasts 2 hours on 4 ltrs. Does anyone have the Oxygo and can tell the their experience using the machine. Lincare stated I can only use tanks from this point forward.

posted 3 months ago
A myPHteam Member said:

Thank you, that helps alot.

posted 3 months ago
4 medium

Did anyone go to the PH conference over the last two days? What was the highlight of the conference?

Will the highlights,new treatments and any information given at the conference be available for those of us who were unable to attend?

posted 3 months ago
A myPHteam Member said:

Ive had to change what i eat after this last stroke, otherwise no coughing. Rice seems to form a dam, so no more of that.

posted 2 months ago