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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 6
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Answer Summary

Many community members dealing with PAH shared that hoarseness and voice changes are a common and frustrating experience, often leaving them... Read more

Many community members dealing with PAH shared that hoarseness and voice changes are a common and frustrating experience, often leaving them unsure whether the cause is the disease itself, medications, or related conditions like LPR or ILD. Several members described losing the ability to teach, coach, or sing due to weakening voices, shortness of breath, and unpredictable coughing spells, with one member noting that a medication change helped improve hoarseness. A recurring theme was learning to adapt, whether through speech therapy, staying hydrated, or simply cherishing the good voice days when they come.

A myPHteam Member

Yes, my voice is often hoarse. I am never sure if it because of the PAH or if it is a side effect of the medications or both. I sing in the Praise Team at church. Between the hoarse-ness and the stuffiness and congestion, I am not sure if I will be able to sing much longer. I never know when the symptoms might subside and grant me relief for a day. That does happen occasionally.

May 7
A myPHteam Member

Yes at times it's fine other go speak it's hoarse . Pulomary tends blame my Trelogy however if that's case it should be that way constantly. It's like restriction on my vocal cords .

May 6
A myPHteam Member

My voice has changed. I had a severe cough for almost a year that scarred my vocal cords. I did speech therapy and that helped some. PAH may have also contributed.

May 6
A myPHteam Member

Same here Heather. It takes all I have to just navigate daily things much less sing. I'm happy to hear they are still able to use their voice for that.

May 7
A myPHteam Member

I am sometimes surprised when I read how many posters here sing! I don't have enough breath in me to really sing anymore...even Happy Birthday can sometimes be a challenge. Then again, considering my voice, the world is probably better off.

May 7

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