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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone have side effects with Winrevair?

A myPHteam Member asked a question 💭
Sterling, CO

I just posted how pleased I have been with Winrevair improving my PAH symptoms. But I have not been pleased with the temporary rash at the injection site on my belly. Anyone else experienced anything like that? It does fade after 5 or 6 days, but it has happened with each injection. Doctor and pharmacist are aware.

March 17
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Reactions
A myPHteam Member

Hi Steven, when I was on Winrevair I did not get a rash at the injection site. If it doesn't bother you to much, I personally would stay on it. But that is just me. I know it helped me so much until I got a stomach bleed. I do hope the rash will stop. God bless you!

March 17
myPHteam

Are you experiencing side effects with Winrevair, specifically a rash at the injection site?

It's great that Winrevair is helping your PAH symptoms! Rash is indeed a known side effect of PAH medications, and injection site reactions are common with subcutaneous treatments.

Since your rash fades after 5-6 days and your Show Full Answer

Are you experiencing side effects with Winrevair, specifically a rash at the injection site?

It's great that Winrevair is helping your PAH symptoms! Rash is indeed a known side effect of PAH medications, and injection site reactions are common with subcutaneous treatments.

Since your rash fades after 5-6 days and your healthcare team is aware, they're monitoring it appropriately. Some redness and swelling at subcutaneous injection sites are considered normal reactions.

Common side effects of PAH medications include:
- Rash
- Headaches
- Nausea or bloating
- Flushing
- Diarrhea
- Light-headedness

Your doctor can help determine if the rash severity warrants any adjustments or if there are ways to lessen the reaction. Keep tracking when it appears and how long it lasts, as you're doing.

A myPHteam member shared about switching from subcutaneous treatment, saying "I couldn't tolerate the skin issues, redness, swelling, and abscesses any longer." Everyone's tolerance is different, so continue communicating with your healthcare team about what's manageable for you.

March 17
A myPHteam Member

My husband started Winrevier but unfortunately had to stop the use of the medication. Bryan started getting grand mal nosebleeds that would take 10 to 30 minutes to finally clot so we stopped the medication. Since we stopped it, the nosebleeds subsided

March 18

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