Now prednisone never affected me when I lowered it.

Reminds me at the hospital they gave me a 45mg of prednison shot, worst 2 days of my life seeing things, I think it was way too much.

Im so sorry, Amber.

Heather, that might explain me having more dizzy moments, I just took another step down in prednisone

How awful!

I have similar difficulty when I have to taper off Prednisone.

I de titrated from 2mg, then 7 days later 1.5mg, next week 1.0, right towards the end of the 1.0mg I felt a little off and dizzy going around a corner, tgen when I started the .05 I was in bed for 2 days. 2nd day I fell in bathroom brusing my ribs while I fell. I lost all muscle strength and couldnt walk. Was able to get back in bed then next am we called 911. Went to hospital and was there for 4 days, diagnosed with hypotension and urinary infection, 101 temp, and slurring my words.
Worst experience of my life there, so Im back on Adempas 1.5mg, at least with this dose my nasal congestion is not as bad.

Thank you for sharing..

I was taken off Adempas when I was reclassified from being Group 1 PAH to being Group 2 Left Heart Disease. When I was taken off the Adempas, we tapered me off gradually and I didn't have any issues at all.