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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPHteam Member asked a question in Newly Diagnosed group 💭
Rancho Cucamonga, CA
October 23, 2025
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Answer Summary

Members strongly advised against exercising to the point of passing out, emphasizing the importance of stopping immediately when feeling faint... Read more

Members strongly advised against exercising to the point of passing out, emphasizing the importance of stopping immediately when feeling faint and consulting a doctor if symptoms persist. Several members shared practical strategies including using a pulse oximeter to monitor oxygen levels during activity, starting with slow short walks and gradually increasing distance and pace, and learning to recognize when the body signals it's time to rest. A recurring theme was that while exercise is beneficial, safety must come first, and each person's limits are different with pulmonary hypertension, so listening to your body without pushing past dangerous thresholds is essential for long-term health.

A myPHteam Member

When you get that feeling please stop and sit down, if it continues please seek medical advice from your dr

October 23, 2025
A myPHteam Member

Please seek a Drs advise, I would not exercise when you feel like that

January 9
A myPHteam Member

Emily, my husband was given 6 mos to a year to live almost 4 yrs ago and he’s still here. No his quality of life is not good but he is not any worse than he was almost 4 years ago. He is in and out of hospital for septic UTI’s but he was back 4 yrs ago as well. As my son told my husbands doctor 4 yrs ago (you are not god and cannot tell me, to bring my dad home on hospice and let him die comfortably) well here we are and he is still alive. We changed our whole lives because what the doctor said. I sold my house and we moved in with our son because I was afraid to be alone watching him die. We did not bring him home on hospice but we did do palative care. So Emily be strong and do not listen to what the doctor says.

November 25, 2025
A myPHteam Member

All of what Janine said. Never push yourself to that point. I will be 83 in January. I'm not able to exercise due to no energy, back, and hip problems. Plus AGE! You will get to your point, everyone is different and this disease is cruel. I wish you the best.

October 26, 2025
A myPHteam Member

Not until you hurt yourself! If you haven't got an oximeter yet, you should get one. When you work out don't let yourself get below whatever your 'safe limit' works out to be. Passing our when you are ready for it may not be harmful, but you have many years of falling down practice to work on before you are ready for the Ambulance to Emergency Room challenge. It could be pretty embarrassing! It made me realize how bad things could be when I was taking my walking test and the nurse in charge asked it I wanted an ambulance. I was trying to tell her I was ok, an she with equal enthusiasm telling me I was NOT ALRIGHT! I just thought I had this as a regular condition for living. They made me get an oxygen machine that afternoon.! I think I was in the 60's back then. I do better now, but it has taken a lot of therapy to get here. Also from what I read, not everyone can get better. I am sure it is no secret that there is no cure for this, only management.

October 25, 2025

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A myPHteam Member asked a question 💭
Rancho Cucamonga, CA

A myPHteam Member asked a question 💭
Rancho Cucamonga, CA