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December 28, 2023
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Answer Summary

Members connected over shared experiences with Raynaud's phenomenon, a condition where fingers and toes turn pale, blue, or red in response to... Read more

Members connected over shared experiences with Raynaud's phenomenon, a condition where fingers and toes turn pale, blue, or red in response to cold or exertion, often affecting those with pulmonary hypertension and autoimmune conditions like Sjogren's. Several members shared practical strategies including carrying hand warmers indoors, wearing gloves even in mild weather, keeping heating pads nearby, and avoiding cold triggers like air conditioning and grocery store freezers. A recurring theme was the relief of finding others who understood the condition after having their symptoms dismissed by doctors, along with recognition that narrowed blood vessels causing PH can similarly affect circulation throughout the body.

A myPHteam Member

Hi I have seen someone that has this and they got better taking supplements.

December 31, 2023
A myPHteam Member

I have this problem when my hands and fingers get cold. Usually it's only on a couple of fingers.

December 30, 2023
A myPHteam Member

@A myPHteam Member you are very welcome. If you think about it, it makes sense that if the blood vessels in our lungs are narrowing, reducing blood flow that this can happen in other parts of the body as well. In fact, my rheumatologist has referred me to a vascular specialist. I have a lot of leg pain. After examining my legs, she suspects I may have vascular insufficiency.

January 1, 2024
A myPHteam Member

All my fingers from the knuckles up are pale compared to my lower fingers. They stay that way, but there are times my inner fingers turn bluish and then red. I really thank you for answering my question. Happy New Year to you Christine!!!😊

December 31, 2023
A myPHteam Member

I have PAH and an autoimmune disease called Sjogren's. Raynaud's is common with both conditions. It affects my hands and feet. Both will get very cold. I glove when I am outside during even cool weather, wear socks, and keep a heating pad close by.

December 31, 2023

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