I too have Raynauds, winter can be brutal, Raynauds and Sjorgrens were the first things the rheumatologist found when I was first diagnosed with Mixed Connective Tissue Disease, which led to my ILD, pulmonary fibrosis and now mild PH. I was started on plaquenil for a couple of years, before the ILD showed up and I went up to Chicago for a 2nd opinion. I had just gotten a little short of breath walking up my stairs in my house, I mentioned it to the rheumatologist and she sent me to the pulmonologist that found the lung disease. They changed me to an immunosuppressant, mycophenolate, when I went to Univ. of Chicago. My raynauds use to be a lot worse when I was still working and had a lot of stress from that, after I retired and the stress went down my raynauds wasn't as bad, still there but better, winter is still hard.

I have Crest Syndrome. The raynaud's phenomenon is pretty rough. I have had ulcers before. I have rechargeable hand warmers, and use gloves.

I think it sounds like raynauds to me and yes it is something to be concerned about. There was a medicine my Rheumatologist put me on that helped me alot. But when I found out I had PAH and I started o all the PH meds I had to stop that med because my blood pressure dropped way down. All the PH meds should help with raynauds but I don't find they are helping. I am so thankful I haven't gotten any ulcers on my fingers yet. Raynauds is definitely very painful!! Gid bless you!! 🙌❤️🙌

Hey Cindy! I think so. I haven’t been diagnosed. But when my hands get really cold my fingertips turn purple, hurt, and start tingling.

I told my pulmonologist about it, but he has yet to respond. I don’t know if I should be concerned about it or not.

Yes, I have it but very mild. Some of my fingers are affected in winter. I've had this several years before my PAH diagnosis.