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Your Answers: The Worst PH Advice (Infographic)

Posted on November 29, 2018

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and hundreds of you took the time to respond.

What did we learn? From the unconcerned ("Just get moving") to the plain unhelpful ("Try to relax more"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.

Some of the most common answers we heard:

  • Just take a deep breath
  • But you look so well
  • Take your time
  • Why are you so tired all the time?
  • Try to relax more
  • Join a gym. It will be fun.
  • Your medications don't cure it?


Everyone's situation is different and not all of these apply to each person. Tell us: What advice about pulmonary hypertension do YOU wish people would stop telling you?

All updates must be accompanied by text or a picture.

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