Connect with others who understand.

Sign up Log in
Resources
About myPHteam
Powered By
See answer
See answer

Your Answers: The Worst PH Advice (Infographic)

Written by myPHteam
Posted on November 29, 2018

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and hundreds of you took the time to respond.

What did we learn? From the unconcerned ("Just get moving") to the plain unhelpful ("Try to relax more"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.

Some of the most common answers we heard:

  • Just take a deep breath
  • But you look so well
  • Take your time
  • Why are you so tired all the time?
  • Try to relax more
  • Join a gym. It will be fun.
  • Your medications don't cure it?


Everyone's situation is different and not all of these apply to each person. Tell us: What advice about pulmonary hypertension do YOU wish people would stop telling you?

A myPHteam Member

My own child and her family think I have been exaggerating what PH does since I sent her literature about having a year to a year and a half to live. It has now been 13 years before I went into… read more

All updates must be accompanied by text or a picture.

We'd love to hear from you! Please share your name and email to post and read comments.

You'll also get the latest articles directly to your inbox.

Subscriber Photo Subscriber Photo Subscriber Photo
143,470 members
Subscribe
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service.
Privacy Policy Terms of Use
All updates must be accompanied by text or a picture.

Subscribe now to ask your question, get answers, and stay up to date on the latest articles.

Get updates directly to your inbox.

Subscriber Photo Subscriber Photo Subscriber Photo
143,470 members
Subscribe
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service.
Privacy Policy Terms of Use

Thank you for subscribing!

Become a member to get even more