We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and hundreds of you took the time to respond.
What did we learn? From the unconcerned ("Just get moving") to the plain unhelpful ("Try to relax more"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.
Some of the most common answers we heard:
Everyone's situation is different and not all of these apply to each person. Tell us: What advice about pulmonary hypertension do YOU wish people would stop telling you?
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My own child and her family think I have been exaggerating what PH does since I sent her literature about having a year to a year and a half to live. It has now been 13 years before I went into… read more
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