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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPHteam Member asked a question 💭
Vernal, UT

Everywhere I try to find this answer. It's always the same list of symptoms, but I've got some weird symptoms that are not listed anywhere like my feet. Tingle, my bones ache my hips hurt. And I've got this weird sensation in my throat and my lungs, it's not painful It's just an extremely weird feeling that I can't explain so I wondered if anybody else was having weird random symptoms

September 7, 2023
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A myPHteam Member

I know for me Uptravi causes some of these symptoms. What medications are you on?

September 8, 2023
A myPHteam Member

I have arthritis, so my aches and pains come and go. Other than sob when active, I use oxygen for that. I do tire easily. I have Raynaud's Phenomenon, so my hands and feet do tingle when they get cold.

September 8, 2023
A myPHteam Member

My feet and legs tingle because I have Neuropathy. It is numbing my feet and legs as it moves upward. Perhaps a neurologist could help you? I'm sorry, I don't have any weird feelings in my throat and lungs, but my joints hurt. Partly because of osteoarthritis, partly because of a bad back, and partly because I'm old and aches and pains seem to have come along for the ride. My knees, hips, and even my ankles hurt at times and two or three days before a change in the weather, my neck, elbows, and shoulders get so stiff I can hardly move them. this is all due to a variety of reasons that I won't bore you with, but I don't think it's PH. The doctor hasn't ever said that it was, at least. My throat can get very dry and I have to keep mints, or little hard candies on hand to avoid this at times.

September 8, 2023

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