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A myPHteam Member asked a question 💭
Jefferson, ME

I can not go shopping because I end up in so much pain I want to scream.

April 14, 2022
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Answer Summary

Members shared deeply relatable experiences about the challenge of walking and shopping with pulmonary arterial hypertension, describing... Read more

Members shared deeply relatable experiences about the challenge of walking and shopping with pulmonary arterial hypertension, describing severe shortness of breath, leg weakness, and debilitating back pain that forces them to limit their activities. Several members offered practical strategies including using store electric carts for freedom and dignity, rollator walkers with seats for rest breaks, portable oxygen units, pain patches, back braces, and breaking shopping trips into smaller sessions spread across multiple days. A recurring theme was the importance of giving yourself permission to use mobility aids without shame, pacing activities carefully, and advocating with doctors for oxygen therapy and pain management to reclaim some independence.

A myPHteam Member

Thank you for sharing. Those carts help so many to be able to shop. I wish they had more 9t them.

April 28, 2022
A myPHteam Member

When I first got sick, I didn't understand what was happening. I would go to the store and it felt like my legs were going to completely give out. I could only go in the store down one aisle and back to the checkout. I couldn't do my normal shopping. I also had pain in my back and hips. Finally, I got the courage to use the electric shopping cart at the store. It was such a relief. I had the freedom to shop as long as I wanted to. People were nicer to me than when I tried to walk. Now, I only shop in stores that have those electric carts. I have waited a half hour, at times, for one of those carts. So, if your stores have those electric carts, use one. They are pure freedom.

April 27, 2022
A myPHteam Member

Thank you for sharing. Lower back for pain a nd spasms in my legs

April 26, 2022
A myPHteam Member

Linda, I have a walker and am using it once a day to do some walking. It has a seat so I can sit and rest when it gets too much.

April 25, 2022
A myPHteam Member

Linda, I have an upcoming appt with a pulmonolgist and my primary care thinks she can get me going better. I do think I need some oxygen.

April 24, 2022

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