Connect with others who understand.

sign up log in
Resources
About myPHteam
Powered By

What Does a Good Day Look Like With PH?

Posted on May 18, 2018

A good day with pulmonary hypertension is a wonderful thing. When we are able to enjoy our favorite activities and people, we feel gratitude. Sometimes it's having the energy to cook a meal. Sometimes it's getting out of the house for a walk or a movie. And sometimes a good day means feeling not so run-down and crummy.

On myPHteam, the social network and online support group for those living pulmonary hypertension, members talk about a range of personal experiences and struggles. Day-to-day life with PH is one of the top 10 topics most discussed.

Here are some conversations about day-to-day life:

I needed to housework today and tried my best - but I didn't realize how hard it can be.

How does PH limit my day to day life?

I put my headphones on with some holiday rock and roll, bumped up my O2, and danced around the kitchen for a while. I'm feeling more like a real person again and not so much the invalid I've made myself lately.

Gonna spend most of my day reading. Ran lots of errands this weekend. Now for some downtime.

I was able to volunteer today with minimal discomfort, despite the somewhat chilly temps outside.

I'm trying to decide if I should try to keep working or not. Any tips?

Can you relate?

Have another topic you'd like to discuss or explore? Go to myPHteam today and start the conversation. You'll be surprised just how many others may share similar stories.

Feel free to ask a question here.

All updates must be accompanied by text or a picture.

Related articles

Pulmonary arterial hypertension (PAH) is a type of pulmonary hypertension (PH) caused by the...

6 Medical Specialists You Need on Your PAH Care Team

Pulmonary arterial hypertension (PAH) is a type of pulmonary hypertension (PH) caused by the...
Living with pulmonary arterial hypertension (PAH) can make everyday tasks and activities...

9 Tips for Living With PAH

Living with pulmonary arterial hypertension (PAH) can make everyday tasks and activities...
The life expectancy of a person with pulmonary arterial hypertension (PAH) has vastly improved in...

What’s the Life Expectancy With Pulmonary Arterial Hypertension?

The life expectancy of a person with pulmonary arterial hypertension (PAH) has vastly improved in...
Pulmonary arterial hypertension (PAH) is a rare disease that’s not very well known amongst the...

6 Facts About PAH That Aren’t Well Known

Pulmonary arterial hypertension (PAH) is a rare disease that’s not very well known amongst the...
Pulmonary arterial hypertension (PAH) is a rare cardiovascular disease that requires ongoing...

5 Ways To Advocate for Yourself if You Have PAH

Pulmonary arterial hypertension (PAH) is a rare cardiovascular disease that requires ongoing...
Effective communication between people with pulmonary arterial hypertension (PAH) and their...

How To Work With Your Doctor To Get What You Need for PAH

Effective communication between people with pulmonary arterial hypertension (PAH) and their...

Recent articles

Rosetta is a 35-year-old woman living with idiopathic pulmonary arterial hypertension (iPAH). She...

My Life With PAH

Rosetta is a 35-year-old woman living with idiopathic pulmonary arterial hypertension (iPAH). She...
Treating PAH with two or more therapies, known as combination therapy, is an effective way to...

Finding the Best PAH Treatment: What Is Combination Therapy?

Treating PAH with two or more therapies, known as combination therapy, is an effective way to...
Endothelin is a small protein in the blood that helps regulate blood pressure. High levels of...

Endothelin and Pulmonary Arterial Hypertension: 6 Things To Know

Endothelin is a small protein in the blood that helps regulate blood pressure. High levels of...
Whether you’ve been on combination therapy or are just starting it for pulmonary arterial...

5 Questions To Ask Your Doctor About PAH Combination Therapy

Whether you’ve been on combination therapy or are just starting it for pulmonary arterial...
Early on, pulmonary arterial hypertension (PAH) doesn’t typically cause symptoms. However, many...

PAH and Swelling: 10 Things To Know

Early on, pulmonary arterial hypertension (PAH) doesn’t typically cause symptoms. However, many...
Pulmonary arterial hypertension (PAH) is high blood pressure of the arteries that take blood from...

Finding the Best PAH Treatment: 6 Facts To Know

Pulmonary arterial hypertension (PAH) is high blood pressure of the arteries that take blood from...
myPHteam My pulmonary hypertension Team

Thank you for subscribing!

Become a member to get even more:

sign up for free

close