Answer Summary

Members shared mixed experiences with Opsumit for pulmonary hypertension, with some describing it as a miracle drug that significantly lowered... Read more

Members shared mixed experiences with Opsumit for pulmonary hypertension, with some describing it as a miracle drug that significantly lowered their pulmonary pressure and improved breathing, while others reported that its effectiveness diminished after several months or required combination therapy with other medications. Several members mentioned common side effects including severe anemia requiring iron infusions or blood transfusions, fluid retention, and in one case glaucoma, though many found these manageable with medical support. A recurring theme was the importance of advocating persistently with doctors when symptoms return or side effects arise, and the recognition that treatment often requires adjusting medications or adding drugs from different therapeutic groups to maintain quality of life.