I just went on original Medicare in December and have AARP secondary. I chose Medicare Part D and am on Wellcare for drug coverage. I just got info on how much they pay for my Adempas and Opsumit. It adds up to more than $250,000/year and I pay about $80/month in premiums for Part D. Wow!
Answer Summary
Members shared their experiences navigating Medicare Part D coverage for pulmonary arterial hypertension medications, with many expressing... Read more
Check into the Assistance Fund. This is a pulmonary hypertension assistance program which picks up the cost where your insurance doesn't. Please try to apply.
I am so darn lucky to be a Johnson Abd Johnson retire so 3 of the most expensive meds I take are covered at no charge. I deliberately chose meds made by Janssen, a J&J company, to maximize keeping my costs low.
Yes, I'm on medicare, I have a supplemental and a part D plan with wellcare, I have a $2000 out of pocket per year with the option to pay all at once or divided evenly through out the year. No monthly premium On Uptravi, tadalafil and ambristentan with total of $27,600 drug cost per month that is completely paid. I have found that any insurance I have enrolled with has refused my Uptravi and we had to file a "Formulary exception" because of denial. Took about 10 days but in each instance it was accepted. Have been on these medications since 2018. Praise God I pay nothing out of pocket per month.
How do they do that? No premium for a drug insurance plan??
I can highly recommend this fund. I have received assistance from them that covers all costs that my insurance does not pay.
@A myPHteam Member Most of us rely on financial assistance for our meds. When I was taking PAH Tier 5 meds I was getting financing from 2 different foundations. I'm off those now as I was reclassified as Group 2 but I get my Jardiance for free from the manufacturer. I am really fortunate that my specialists have caring staff who are very helpful in the process of getting financial aid.