Below the surface, living with PH can mean days spent in bed, missed appointments, and alternate days when we seem "fine." There's so much more to pulmonary hypertension (PH) than meets the eye. We know that PH comes with many possible combinations of symptoms, many of which appear invisible to outsiders. Most people don't see the many symptoms we experience.

On myPHteam.com, the social network and online support group for people living with pulmonary hypertension, members discuss the chronic nature of the disease and its hidden symptoms. myPHteam has grown to reach 4,300+ members who have shared thousands of conversations about life with PH. Throughout the year we will share themes we see come up time and time again on myPHteam. We chose the image of an iceberg to represent PH symptoms because the life-impacting implications of a PH diagnosis aren't obvious on the surface. Please share to spread PH awareness!
This list is by no means exhaustive. What symptoms would you add?
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My doctor never said anything about the symptoms of my PAH. I knew about the chest pain because I have had that for awhile. But now I have cramps in my legs, Then when I walk to the bus stop or just… read more
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