Connect with others who understand.

sign up log in
About myPHteam

Connect with others who understand.

sign up log in
About myPHteam

Living With Pulmonary Arterial Hypertension: Life Hacks for Everyday Help

Posted on July 15, 2022
Medically reviewed by
Manuel Penton, M.D.
Article written by
Joan Grossman

  • Life hacks that help with daily activities, such as taking showers, climbing stairs, and dealing with weather changes, can make life with pulmonary arterial hypertension (PAH) easier.
  • Oxygen concentrators may help with travel, but get medical advice before flying if you have PAH.
  • Pulmonary rehabilitation can safely help increase physical activity for people with PAH.

Living with pulmonary arterial hypertension can make everyday tasks and activities challenging. PAH can impact many aspects of day-to-day life, such as getting around, showering, and sleep.

Members of myPHteam often seek advice for managing daily life with PAH. “Tired … everyday. Suggestions?” one member asked. “Every day is a struggle,” another member wrote.

Fortunately, there are some life hacks that can help people with PAH throughout their daily lives. This article offers some of those tips — many of which are tried and true advice from other myPHteam members.

PAH and Its Effects on Daily Life

A type of pulmonary hypertension, PAH is a rare medical condition. Specifically, it’s a heart and pulmonary disease that causes blood vessels in the lungs to become blocked, narrowed, or destroyed. This can result in high blood pressure in the lungs. In people with PAH, the right side of the heart works harder to pump blood through damaged pulmonary blood vessels, which can weaken and damage the heart muscle and lead to heart failure.

PAH symptoms include chest pain, shortness of breath, dizziness, fatigue, and swelling (edema) in legs, ankles, and abdomen.

There are several subtypes of PAH, including:

  • Idiopathic PAH, which has no identifiable cause
  • Heritable PAH, which is associated with a family history of the condition
  • Associated PAH, which is linked to other health conditions, such as congenital heart disease, connective tissue disease, liver disease, and HIV

9 Ways To Make Daily Activities Easier With PAH

There is no cure for PAH, but treatment plans can help manage symptoms and improve quality of life. Moreover, there are some life hacks you can try to make daily life with PAH easier.

1. Use a Walker To Get Around More Easily

PAH can have a significant impact on physical mobility, a topic myPHteam members frequently discuss. Some members find using a walker makes shopping and other daily activities easier.

“I take my walker with me everywhere. I finally broke down and bought a three-wheeled walker to use when I know I’m just going in and coming right back out of stores,” one member wrote.

“Went to Walmart today and took my walker so I could sit down when I needed to,” another member shared.

2. Practice Pursed Lip Breathing When Tackling Stairs

Climbing stairs can also be difficult for people living with PAH. “The stairs are a killer, and I avoid them as much as possible,” a member said.

One member recommended a technique called pursed lip breathing, which helps slow breathing down and can relieve shortness of breath. “Have you tried pursed lip breathing? I find it helps when I am walking, going up stairs or just being busy and in a hurry,” they wrote. “Breathe in through your nose and breathe out through your mouth with your lips pursed together. I find my endurance is much better when I do that, and it allows a better exchange of air.”

Another member agreed: “Practice your pursed lip breathing. It really does help with your oxygen saturation!”

3. Avoid Long, Hot Showers

For people with PAH, something as simple as taking a shower can be difficult. Long, hot showers or baths increase the risk of lowering blood pressure to a potentially life-threatening level.

Some myPHteam members have shared suggestions to reduce the risks.

“Humidity is hard on us! Cool showers work,” a member said.

“I get bad anxiety when taking a shower or bath. I have to have a window cracked open or a small fan on,” another member offered.

Talk to your pulmonologist about other ways you can safely and comfortably shower or bathe.

4. Breathe Easier With an Oxygen Concentrator While Flying

Travel can also pose challenges for people with PAH. “I can still travel and enjoy it with some limitations. My portable oxygen concentrator makes it possible,” a myPHteam member wrote.

An oxygen concentrator pulls oxygen from the air and filters out nitrogen. These devices are available only by prescription for certain types of lung diseases, such as pulmonary hypertension and chronic obstructive pulmonary disease (or COPD).

Researchers recommend that people with PAH discuss their travel plans with their doctor well in advance. It’s important to get medical advice before flying, particularly if you need supplemental oxygen or if you use a pump for medication.

5. Cut Back on Salt and Fluids To Reduce Leg and Foot Swelling

People with PAH may experience edema, or swollen feet and legs, due to retention of fluids. Health experts recommend that people with PAH reduce their intake of sodium (salt) and fluids to help prevent fluid retention and the swelling that it causes. Sodium is found in a wide variety of foods, including sweets, fruit drinks, and canned vegetables. You can learn more about reducing salt and fluids in this video from the Pulmonary Hypertension Association.

“Fluid gain is our worst nightmare! Read your labels! Sodium is in everything! Try to keep your feet elevated when you sit down. If you have support, stockings wear them during the day when you’re up,” stressed one member.

Members of myPHteam often talk about their own strategies for preventing and reducing swelling.

“When I see the swelling start, I get up and start walking around, which usually curtails the swelling,” a member said.

“I use the tube stocking they put on you just before they put on a cast. It works better than all those other stockings for me. My toes are free and it covers up to my knees,” another member wrote.

6. Equip Yourself for Weather Changes

When temperatures get too warm or too cold, people with PAH can have difficulty catching their breath.

One member had this advice. “With the increased temps and humidity, my shortness of breath is also increased. Trying to do more breathing exercises and keeping an inhaler on me!! This is such a learning process!”

Another member offered a tip for cold weather. “When the weather gets down into the teens and low 20s, I will usually wear a medical face mask to keep the frost and fog out of my lungs.”

7. Sleep More Soundly With a CPAP Device

People with PAH have higher rates of sleep-related breathing disorders, such as sleep apnea, which can disturb sleeping patterns. A poor night’s sleep can take a significant toll on your energy and well-being.

“I've noticed a lot of us have insomnia and need to take naps to get through the day,” a myPHteam member wrote.

“I can never sleep more than three hours at a time! It affects everything, breathing, fatigue, mood!” another member lamented.

Studies show that people with heart failure and sleep apnea can improve their sleeping with the use of CPAP (continuous positive air pressure) devices. “I use the CPAP with oxygen because of my PAH,” wrote one member. “I can't sleep without it.”

8. Don’t Overdo It

Sometimes it’s just too hard to keep up with plans when living with PAH. Members of myPHteam have shared self-care tips to help you avoid taking on too much.

“If I plan things or have an appointment or social event, I always make sure I say this one thing that is sort of the ‘get out of jail’ card in a Monopoly game: ‘I will do my best to be there, but if for some reason, I don’t feel well, then I will let you know. I never know when I will get sick, but if I am sick, then we can reschedule,’” shared one member. “This is the best way to reduce stress and anxiety levels associated with living with PAH.”

Another member had this advice: “There are going to be plenty of up days and down days. Please do not overdo it on your up days because you will wind up paying for it for a day or two afterwards. Please try to pace yourself in a way that suits you so you will have more up days than down.”

Having the right medical team is also essential, a member wrote. “This disease is not curable, but it is treatable. My first thought is you really need a pulmonologist and cardiologist who understand and treat this disease.”

9. Find the Right Diet and Exercise Plan for You

Maintaining a healthy weight and getting an appropriate amount of exercise can have numerous physical and mental-health benefits for people with PAH. But people with the condition are sometimes uncertain where to start with making healthy lifestyle changes.

“I am losing weight slowly by eating five small meals a day on a cake-size plate. I also drink a lot of water for hydration. So far so good for me,” one myPHteam member shared.

Another member advised, “A dietitian can help you regulate your diet so you can get on to better things.”

Finding the right exercises can also be challenging. One member recommended a pulmonary rehabilitation program. “I went to pulmonary rehab this morning. They put me on a heart monitor. They start you out slowly. I rode a stationary bike and did the treadmill for 10 minutes each.”

“Do some mindful breathing. Find a slow yoga class online,” another member recommended.

One member wrote about an app she uses to stay fit. “I just started an exercise program for all my lung problems. It’s an app I have on my iPad, and I mirror it on my TV. It covers breathing, balance, walking, meditation — all pretty easy and I can do it at my own pace.”

Be sure to ask your doctor about what kind of exercise may be right for you. Your health care provider can give you a referral for a physical therapist who can work with you to find an appropriate level of physical activity.

Talk With Others Who Understand

On myPHteam — the social network for people with pulmonary arterial hypertension and their loved ones — more than 45,000 members come together to ask questions, give advice, and share their stories with others who understand life with PAH.

Are you living with PAH? Share your experience in the comments below, or start a conversation by posting on your Activities page.

All updates must be accompanied by text or a picture.
Manuel Penton, M.D. is a medical editor at MyHealthTeam. Learn more about him here.
Joan Grossman is a freelance writer, filmmaker, and consultant based in Brooklyn, NY. Learn more about her here.

Related articles

Pulmonary hypertension (PH) doesn’t just affect physical health. It can take a toll on emotional...

Social Life With PH: 5 Ways to Combat Loneliness

Pulmonary hypertension (PH) doesn’t just affect physical health. It can take a toll on emotional...
The term “palliative care” is often thought of as end-of-life care, or hospice care. However, it’...

Palliative Care: Improving Quality of Life With PH at Any Stage

The term “palliative care” is often thought of as end-of-life care, or hospice care. However, it’...
Pulmonary hypertension (PH) is a specific type of high blood pressure that affects the pulmonary...

Living With Pulmonary Hypertension

Pulmonary hypertension (PH) is a specific type of high blood pressure that affects the pulmonary...
Pulmonary arterial hypertension (PAH) can impact many parts of the body, so you may need a health...

Building Your Pulmonary Arterial Hypertension Care Team

Pulmonary arterial hypertension (PAH) can impact many parts of the body, so you may need a health...
There are five types of pulmonary hypertension (PH), a kind of blood pressure that affects your...

Pulmonary Arterial Hypertension in Pregnancy: What You Need To Know

There are five types of pulmonary hypertension (PH), a kind of blood pressure that affects your...
People who have pulmonary hypertension (PH) and chronic obstructive pulmonary disease (COPD),...

Managing Pulmonary Hypertension and COPD

People who have pulmonary hypertension (PH) and chronic obstructive pulmonary disease (COPD),...

Recent articles

Pulmonary arterial hypertension (PAH), a subtype of pulmonary hypertension, is characterized by...

Prostanoids for Pulmonary Hypertension

Pulmonary arterial hypertension (PAH), a subtype of pulmonary hypertension, is characterized by...
Although pulmonary hypertension (PH) can be caused by many underlying conditions, in some cases,...

What Is Primary Pulmonary Hypertension?

Although pulmonary hypertension (PH) can be caused by many underlying conditions, in some cases,...
Familial pulmonary arterial hypertension (FPAH) is a type of pulmonary arterial hypertension...

Understanding Familial Pulmonary Arterial Hypertension

Familial pulmonary arterial hypertension (FPAH) is a type of pulmonary arterial hypertension...
Pulmonary hypertension (PH) can arise from many underlying causes and conditions. Regardless of...

End-Stage Pulmonary Hypertension

Pulmonary hypertension (PH) can arise from many underlying causes and conditions. Regardless of...
If you’re living with pulmonary hypertension (PH), you may be wondering whether the condition is...

HIV and Pulmonary Hypertension: What’s the Connection?

If you’re living with pulmonary hypertension (PH), you may be wondering whether the condition is...
The Centers for Disease Control and Prevention (CDC) has approved a second COVID-19 booster shot...

What People With Pulmonary Hypertension Should Know About Getting a Second COVID-19 Booster Shot

The Centers for Disease Control and Prevention (CDC) has approved a second COVID-19 booster shot...
myPHteam My pulmonary hypertension Team

Thank you for subscribing!

Become a member to get even more:

sign up for free

close