Sign up for this email series:
People with pulmonary hypertension (PH) frequently experience problems sleeping. “I am lucky if I get four to five hours of sleep at night and have sometimes gone all night with no sleep,” a MyPHTeam member commented.
Sleep problems among people with pulmonary hypertension are often the result of obstructive sleep apnea, a condition which causes breathing to stop and start throughout the night.
Lots of MyPHTeam members use a continuous positive airway pressure (C-PAP) machine to treat their sleep apnea and help them sleep better at night. “That first night of sleep with my C-PAP machine was years ago and I still remember how good it was and how much better I felt,” one member wrote.
Not everyone feels the benefits of a C-PAP machine right away. “It took me the better part of the first year to get used to the C-PAP and have the results of using it,” a member commented. “I was more tired and felt more sick. You and your body just have to acclimate to it to achieve the desired results.”
Talk to your healthcare provider if you’re struggling with your C-PAP machine.
Not everyone with pulmonary hypertension has sleep apnea. For some MyPHTeam members, the biggest contributor to insomnia is stress. One member wrote: “My anxiety goes high at night. I don't know if I'm afraid I'm going to stop breathing or what. 🤔”
Meditation, deep breathing, or other calming activities may help if worry is keeping you up. Talking to a counselor can also help you deal with anxiety and other challenging emotions that come with living with pulmonary hypertension.
On MyPHTeam, the social network and online support group for those living with pulmonary hypertension, members talk about a range of personal experiences and struggles. Sleep problems and insomnia are some of the most discussed topics.
Here are some conversations about sleep problems and insomnia:
Here is a question-and-answer thread about sleep problems and insomnia:
Do you have trouble sleeping at night? Share your experience in the comments or on MyPHTeam.
Connect with others who are living with pulmonary hypertension. Get members only access to emotional support, advice, treatment insights, and more.sign up