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Fatigue and PH

Posted on November 07, 2018

"I didn't get too much work done. I did go get groceries. As usual, I became breathless, my heart rate accelerated a little. But this wasn't as bad as it has been before." -A member on myPHteam

On myPHteam, the social network and online support group for those living with pulmonary hypertension, members talk about a range of personal experiences and struggles. Fatigue is one of the top topics most discussed.

Here are some conversations about fatigue:

I need to remind myself that I'm not the only one who has had to make drastic lifestyle changes, make many advance plans for events that I probably can't attend, and remove myself from a group because I'm fatigued, depressed, or sad.

I joined a Healthy Living exercise program (working similar to a pulmonary or cardiac rehab group). I go 3 times per wk (1.5 hrs) of exercise with several health professionals that are working WITH me - to create a program tailored to help increase my exercise tolerance & decrease my fatigue.

I had an ok day today. Just fatigue and weakness. I've had far worse days. I'm confused about this disease. I have "mild" PAH. Some days I feel normal until I try to do normal work at my job. If I lift a box of chicken to bring out of the walk-in, when I set it down then sometimes I faint.

Woke at 2 am, went back to bed at 5 am, woke again at 6 am, and still not feeling the greatest. Feeling tired and run down.

It is so disheartening to become so fatigued after less than an hour of activity. I know; it's the reality of my life now. I must adjust to it and move on, be grateful I'm alive, and still spend time with my grown children.

Can you relate? How does fatigue affect you?

Have another topic you'd like to discuss or explore? Go to myPHteam today and start the conversation. You'll be surprised just how many others may share similar stories.

Feel free to ask a question here.

A myPHteam Member said:

Fatigue all the time. It is hard to handle when you were use to constantly doing something. Now all I want to do is sit down because my legs ache and I feel weak. Would love to find out what could… read more

posted about 1 hour ago

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