Pulmonary hypertension (PH) is a disease in which the pulmonary arteries (blood vessels) between the heart and the lungs become blocked by blood clots, narrowed, or even destroyed. This leads to high blood pressure, and, if untreated, heart failure. Along with chest pain, heart palpitations, and shortness of breath, fatigue is one of the most common symptoms of pulmonary hypertension.
Everyone feels exhausted from time to time. But as those with PH know, fatigue goes beyond everyday tiredness. Fatigue can have a significant impact on a person’s ability to perform daily activities as well as their overall quality of life. However, there are ways you and your health care provider can work together to manage the symptom. Here is what you need to know about fatigue in PH, including what causes it and how it can be managed.
However, some people experience more extreme fatigue. One member explained, “I’ve had some OK days, but I got up this morning so tired and fatigued with even the slightest bit of exertion.”
Some people find that they only experience fatigue under certain conditions. One member said, “I have never fainted from lifting heavy objects. However, it does cause my heart rate to increase and tires me out.”
Another put it like this: “I feel fine when I start a chore, but then soon get tired/weak.”
Others find that the fatigue is pervasive and they struggle to find relief, like one member who shared, “I’m feeling tired and rundown. I take my meds and still experience little relief.”
Others, such as this member, find that fatigue is more challenging than their other symptoms: “I feel such fatigue when I try to walk. The fatigue is much more debilitating than the breathlessness.”
It’s easy for people to feel frustrated and down because their fatigue keeps them from doing things that they love. “It is so disheartening to become so fatigued after less than an hour of activity,” wrote one member. “I know — it’s the reality of my life now.”
Another articulated it like this: “I’m feeling very sorry for myself. I know I have a lot to be thankful for, but it’s hard, day in and day out, to be constantly thinking about my conditions.”
PH often occurs alongside other medical conditions such as:
These conditions may contribute to fatigue or even cause the symptoms themselves.
PH causes the pulmonary arteries running between the heart and lungs to narrow, impeding blood flow. More specifically, in pulmonary hypertension, the right side of the heart struggles to pump blood to the lungs. This is where the blood picks up oxygen and is pumped to the rest of the body.
When the body is struggling to get enough blood to the lungs, the heart is working harder than it usually does. Combine this with the fact that the body is likely not getting enough oxygen, and you can understand how someone diagnosed with PH might feel fatigued.
In people with PH, the body expends a lot of extra energy on tasks that are essential to life, which can leave less energy for doing other things. On top of that, body systems (like the muscles, ligaments, and bones) cannot work as well when they do not have enough oxygen. The end result is fatigue.
PH can also make it difficult to move around and do normal things, let alone exercise. This lack of exercise can mean that you feel additional fatigue during physical activity because your body tires more easily.
Learn more about exercise of pulmonary hypertension.
PH is associated with obstructive sleep apnea — a sleep disorder in which the muscles in the back of the throat relax, partially or completely blocking the airways. This repeatedly occurs throughout the night, disrupting a person’s sleep. If you have sleep apnea, you may struggle to get good sleep or to feel rested in the morning. This will only add to your sense of fatigue.
There is no cure for PH. However, there are many ways to treat PH. Treating the condition should help alleviate symptoms of fatigue, too. Talk to your health care provider to learn more about what might work for you.
Several medications can help with PH. These include:
A pulmonary hypertension specialist will help you find the right combination of medications to manage your symptoms.
Many people diagnosed with PH find that using extra oxygen helps alleviate their fatigue. Some people use it all the time, and others only use it when they need it.
One member who uses oxygen said, “When I’m walking with oxygen … I stop and rest for a minute (to get my oxygen saturation rates up again), then I am good to go another 25 to 35 feet before I have to stop again.”
Learn more about oxygen therapy for pulmonary hypertension.
One member explained, “I joined a Healthy Living exercise program (similar to a pulmonary or cardiac rehab group). I go three times per week (1.5 hours) to exercise and work with several health care professionals. They are working with me to create a program tailored to help increase my exercise tolerance and decrease my fatigue.”
Although pulmonary rehabilitation will not make PH go away, it does help. One member put it this way: “Even a little bit makes a difference.”
Many doctors recommend lifestyle changes to help manage pulmonary hypertension. These include:
These may seem simple, but they can help a lot.
As one member wrote, “Fatigue is dominant with this disease … Listen to your body and rest while fatigued. Little changes can add up to help you feel better."
By joining myPHteam, the social network for people with pulmonary hypertension, you can ask questions and share advice with more than 38,000 members who understand life with PH.
Join today to ask any of your pressing questions about the condition, share your story, or participate in ongoing conversations. Meet people from around the world who deal with pulmonary hypertension and build the support network you’ve been looking for!
Have you experienced fatigue with pulmonary hypertension? How have you managed it? Share your experience and tips in the comments below or by posting on myPHteam.