Pulmonary Hypertension

Questions + Answers

Don't see your question? ask question
View:

6 Search Results

0 medium

So I am retaining fluid swollen everywhere. My doctor scared I am literally drowning myself. Gave me 24 hrs to get fluid off or go to er.

So I am retaining fluid swollen everywhere. My doctor scared I am literally drowning myself. Gave me 24 hrs to get fluid off or go to er.

So he doubled my lasix and I have been cathed since monday. Let's say 60 hours now and I have got off 10 liters of fluid. When do I know if I get to much off at one time? I am already feeling so tired and week. The swelling has gone done and I can now move my hands and feet.

9 mini
A myPHteam Member said:

How much fluid limit has the Doctor put you on? Watch your skin and notice how dry it is becoming and you will know when you are getting to your limit… read more

posted 3 days ago
3 medium

Does anyone have the Oxygo Portable machine?

Does anyone have the Oxygo Portable machine?

I have the Oxygofit right now. At home i am on 4 ltrs and feel fine. But the oxygo fit only goes to 3 ltrs which is starting to limit my activites. Lincare stated the Oxygo battery only lasts 1 hr but the information on the internet states the battery lasts 2 hours on 4 ltrs. Does anyone have the Oxygo and can tell the their experience using the machine. Lincare stated I can only use tanks from this point forward.

4 mini
A myPHteam Member said:

Get a Concentrator. Use the tanks when you go out..

posted 10 days ago
5 medium

Letairis - TAKING IT FOR 8 MONTHS NOW BUT CONSISTENTLY HAS LOWERED PLATELETS NOW 100

Letairis - TAKING IT FOR 8 MONTHS NOW BUT CONSISTENTLY HAS LOWERED PLATELETS NOW 100

does letairis can lower the platelets ? any remedy ? Combination of Letairis and Adcirca has lowered my pulmonary pressure from 80 to 45.

4 mini
A myPHteam Member said:

I take potassium & lascix whole one on s,s,t,&th & 1/2 on m, w, & fri

posted 4 months ago
9 medium

Heart-lung transplant

Heart-lung transplant

I am on 10 liters of oxygen...is anyone on that amount.

3 mini
A myPHteam Member said:

No Im on 6 sometimes 7. I am on the transplant list for and lung transplant but still trying to decide if its worth it. I am on veletri 24/7 which is a… read more

posted 9 months ago
8 medium

What are specific symptoms of PH?

What are specific symptoms of PH?

I have PH and also COPD, ILD and rheumatoid arthritis. I am on Letairis for the PH, Spiriva and Breo for lungs and Celebrex for arthritis. All along I have assumed that the SOB when exerting myself too much, or bending over, is from lung issues and the pounding heart is the PH, but could ALL of these symptoms be PH? I'm on 3 liters O2 for exercising and 2 at night. How can I know what meds are working for what problem? I've got checkups with heart and lung docs at the end of May… read more

0 mini
A myPHteam Member said:

I too am on Breo and I was on Celebrex for my Osteoarthritis. I'm curious about you still being on Celebrex. As soon as I was diagnosed with PH and… read more

posted about 1 year ago
8 medium

Letairis

Letairis

I was told by a clinical pharmacist that the effects of Letairis would not be noticed until 4-6 weeks. Is this accurate?

3 mini
A myPHteam Member said:

I have exercise induced PAH. Where can I find up to date information on this condition. Thank you!

posted over 1 year ago
Continue with Facebook
Sign up with your email
Already a Member? Log in