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Top 10 Search Results for "letairis"

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Medication

Medication

Hi guys I’m 19 years old with mild ph pressure of 40. I have taken adcirca it made me pass out, I’m currently on opsumit been on for 1 week and feels like breathing is not getting any better, maybe it’s too soon but my body reacts to medicine quick. I have group 1 PAH due to CHD that got closed. I also run low blood pressure so the medication is sometimes hard to find. Does anyone know or recommend any medication that I can ask my doc?? I see a lot of medication drops blood pressure and cause… read more

A myPHteam Member said:

How often your doctor does a Cardio Cathetarizatiin tests?

posted 7 months ago

Is Anyone On This Site Taking Letaris, Adcirca And Uptravi. I Just Started Uptravi And The Side Effects Are Awful!

Is Anyone On This Site Taking Letaris, Adcirca And Uptravi. I Just Started Uptravi And The Side Effects Are Awful!

A myPHteam Member said:

im taking all three for over 3yrs now.the only side effect i have that is constant is the amount of erections i get from the adcirca.im not even kidding.my dr said that may happen.so now my wife is… read more

posted about 2 months ago

Letairis

Letairis

I was told by a clinical pharmacist that the effects of Letairis would not be noticed until 4-6 weeks. Is this accurate?

A myPHteam Member said:

Yes. My husband worsened once he started Latairis and died within the second month. MD and NP kept saying 'give it time'. But I swear that's what killed him. So very GLAD you took yourself off… read more

posted 5 months ago

Do Other People With Pulmonary Hypertension Experience Feelings Of Isolation Especially During The Holidays?

Do Other People With Pulmonary Hypertension Experience Feelings Of Isolation Especially During The Holidays?

I've been blessed with some improvements in my health but still find myself fatigued quite often especially at times when I want to be more active. I know the COPD and accompanying PH won't go away. I know they will probably get worse. I'm slower than I was, more SOB than I was, but I'm still trying to function without slowing my family and friends down. It is at those times when I feel "left behing" and isolated. Thoughts please. Peace and better breathing everyone!

A myPHteam Member said:

Yes, I am alone but I have Jesus and his words to be with me.

posted 4 months ago

Letairis - TAKING IT FOR 8 MONTHS NOW BUT CONSISTENTLY HAS LOWERED PLATELETS NOW 100

Letairis - TAKING IT FOR 8 MONTHS NOW BUT CONSISTENTLY HAS LOWERED PLATELETS NOW 100

does letairis can lower the platelets ? any remedy ? Combination of Letairis and Adcirca has lowered my pulmonary pressure from 80 to 45.

A myPHteam Member said:

I take potassium & lascix whole one on s,s,t,&th & 1/2 on m, w, & fri

posted about 2 years ago

My Pulmomologist Said I Have PH And Has Not Given Me Anything To Help With Symptoms.

My Pulmomologist Said I Have PH And Has Not Given Me Anything To Help With Symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my shoes or pick anything of any weight up I feel like I am going to… read more

A myPHteam Member said:

You need to come to dr Cruz or dr hicks in columbia sc ,they are the best

posted 8 months ago

Is Anyone Taking Orenitram ?

Is Anyone Taking Orenitram ?

A myPHteam Member said:

I was switched from Remodulin pump to Oren pills back in 2010. I remember it gave me awful bouts of diarrhea, along with nausea. At 1st, I was so excited at the idea of no more IV; the pill only… read more

posted about 1 year ago

Are You Taking Adcirca (Tadalafil) For PAH?

Are You Taking Adcirca (Tadalafil) For PAH?

Did it help? If yes, how long did it take to work, and what difference did you notice. Did you have any side effects?

A myPHteam Member said:

Thanks

posted about 1 month ago

How Do You Deal With This Extreme Fatigue?

How Do You Deal With This Extreme Fatigue?

I have been diagnosed with Scleroderma and am not sure if I have pulmonary problems. I usually work out on a stationery bike for 1/2 hour, 3x a week. On those days I can’t do anything else. Most other days, I can do one thing a day, such as laundry, vacuuming, etc. I’m asleep by 2 pm and seldom am able to visit with friends. I am grateful to be alive and still work on my calligraphy which helps calm me down. Has anyone explored other avenues that might be causing the fatigue other than pulmonary… read more

A myPHteam Member said:

i just read my last response from a month ago concerning going back onto the esbriet...for pulmonary fibrosis...had to stop them again due to side effects...my stomach popped out like i was… read more

posted 3 months ago

What Are Specific Symptoms Of PH?

What Are Specific Symptoms Of PH?

I have PH and also COPD, ILD and rheumatoid arthritis. I am on Letairis for the PH, Spiriva and Breo for lungs and Celebrex for arthritis. All along I have assumed that the SOB when exerting myself too much, or bending over, is from lung issues and the pounding heart is the PH, but could ALL of these symptoms be PH? I'm on 3 liters O2 for exercising and 2 at night. How can I know what meds are working for what problem? I've got checkups with heart and lung docs at the end of May but thought I'd… read more

A myPHteam Member said:

I’m on Celebrex and just recently dx with PAH. No one mentioned it. Maybe I need to ask about that as I’m carrying a lot of water.

posted about 1 month ago