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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 5 Search Results for "Veletri"

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Tracleer

Tracleer

Can this be used for pscoasis?

A myPHteam Member said:

yes it does I am on tracleer an Veletri infusion

posted over 4 years ago

How Long Does It Take To Recover From An Activity?

How Long Does It Take To Recover From An Activity?

I have PAH. When, on that rare occasion that I go out to a Doc appointment AND grab lunch out, it will take me a couple days to recover. The 2nd day is the worst. I'm curious to know how long it takes you to recover from an activity?

A myPHteam Member said:

It takes me a few days after just going to a drs appt

posted 5 days ago

How And When Was Your PH Diagnosed

How And When Was Your PH Diagnosed

A myPHteam Member said:

Anyone that has this disease will never get the proper care outside of a pulmonary hypertension specialist. Most cardiologist and pulmonologist know nothing about this disease much less how to treat… read more

posted about 2 years ago

Heart-lung Transplant

Heart-lung Transplant

I am on 10 liters of oxygen...is anyone on that amount.

A myPHteam Member said:

7 liters sitting 10 when active. What type of device do u use I when u go out. A tank goes down so fast

posted over 1 year ago

Does Anyone Else Get Extremely Short Of Breath And Experience Pain When You Bend Over?

Does Anyone Else Get Extremely Short Of Breath And Experience Pain When You Bend Over?

A myPHteam Member said:

I was formally dx at the Mayo Clinic in Rochester. 2018. 4-5 liters 02 continuous. SOB with/without activity. Chest pain more on then off these days. Post heart cath. we met with transplant surgeon… read more

posted 5 months ago