They symptoms you listed can be side effects of the medication you are taking.
I am using remodulin sub q. I have had such good results reducing pressures that my doctor may switch me to pill form which is Orenitram. I do worry though as i hear it is not as effective at reducing pressures. How has it worked for you?
I was diagnosed with two new disorders after the oranetram pill form remodulin was not working. I also blame an iud. However I was switched last Halloween to a PICC line and infusion remodulin which works. However I was diagnosed with Hep C and ITP which is making me feel very concerned as I have been on Prednisone. That I knew that wasn't working. So I was on a chemo infusion of reflluxin and it is giving as an infusion however it is not chemo but a biotherapy. For four weeks and… read more
Does anyone know how high the pressure % can go in a person with PH? The doctor said the other day that mine were over 100 so I asked how high can they go and he sid he didn't know but said mine were way too high and he's sending me to a PH speciaist.