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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 5 Search Results for "Orenitram"

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Is Anyone Taking Orenitram ?

Is Anyone Taking Orenitram ?

A myPHteam Member said:

I was switched from Remodulin pump to Oren pills back in 2010. I remember it gave me awful bouts of diarrhea, along with nausea. At 1st, I was so… read more

posted 12 months ago

How Has Orenitram Worked For You?

How Has Orenitram Worked For You?

I am using remodulin sub q. I have had such good results reducing pressures that my doctor may switch me to pill form which is Orenitram. I do worry though as i hear it is not as effective at reducing pressures. How has it worked for you?

A myPHteam Member said:

I have a hard time keeping my O2 levels up when on a treadmill, but do pretty good on the recumbent bike. Most of the time I can go 7 to 8 miles with no… read more

posted over 2 years ago

Does Anyone Have Hep C ?

Does Anyone Have Hep C ?

I was diagnosed with two new disorders after the oranetram pill form remodulin was not working. I also blame an iud. However I was switched last Halloween to a PICC line and infusion remodulin which works. However I was diagnosed with Hep C and ITP which is making me feel very concerned as I have been on Prednisone. That I knew that wasn't working. So I was on a chemo infusion of reflluxin and it is giving as an infusion however it is not chemo but a biotherapy. For four weeks and… read more

A myPHteam Member said:

So sorry I pray things will get better

posted 9 months ago

Pressure % In Heart/lung Valve

Pressure % In Heart/lung Valve

Does anyone know how high the pressure % can go in a person with PH? The doctor said the other day that mine were over 100 so I asked how high can they go and he sid he didn't know but said mine were way too high and he's sending me to a PH speciaist.

A myPHteam Member said:

mine has been up to 9000 thats when I stay in the hospital for weeks

posted almost 2 years ago