Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I don't know what to say, I don't know what's going to happen, every day it's a new struggle.
It's not just this I am dealing with homelessness, several chronic health problems, the day to day B.S that I have no choice but deal with. Then of course my personal problems.
I have never felt so lonely in myself everyone tured and ran way so it is what it is.
I just don't understand.
I am ready to just give it all up because this is more a problem the it's worth.

7 days ago
 · 
Reactions

Answer Summary

A member living with drug-induced PAH, homelessness, and multiple chronic conditions reached out expressing deep loneliness and uncertainty... Read more

A member living with drug-induced PAH, homelessness, and multiple chronic conditions reached out expressing deep loneliness and uncertainty about the future, and the community responded with immediate warmth and solidarity. Several members reassured the original poster that people with PAH are living longer than ever, with new treatments constantly emerging and some members living 10 or more years after diagnosis. A recurring theme was that no one has to face this alone, with many encouraging connection through the PH community, prayer, local churches, and seeking care from a PH specialist at a teaching hospital.

A myPHteam Member

Travis, please know that we understand! And as has been said the AI produced response is not from a human on here. That is why AI will never be able to replace the human touch. We have had our diagnosis hit us out of the blue and change our lives drastically, looking up what I had first told me I had 3-5 years to live, well that was back in 2016. Advocate for yourself, ask the hard questions, we understand the feelings of "what do I do?" Get to a teaching hospital that has a PH specialist if you can, as others have mentioned get in with a local church may be more helpful in more ways than you know. Go to the Lord in prayer, HE hears you! You are not alone brother, we are not in your shoes but we do understand how these chronic conditions are so challenging. We all have been praying for you and will continue to do so!!β€οΈπŸ™

4 days ago
A myPHteam Member

@Travisjannsen2 welcome to the PH wizards! We know all and we see all. None of us know how long we have on this earth. All we can do is play the cards we were dealt. Being alone always makes thing seem worse. I myself have always enjoyed being alone I find myself quiet a conversationalist, I never get into an argument, and if I do I always win the argument. But seriously Travis, I have never been alone, I have always had Jesus Christ sitting right beside me. There was a time when I was not aware of the fact that Jesus was right there to listen to my every word. I have no idea if you are a believer in Christ, but I can tell you this, if you are not, there is a big void in life without him. Look back at your life and think of that accident that you walked away from, that time when you knew you were going to be in real trouble and all of a sudden it was all gone and you were find. That was Jesus, he was right there ready to save you. Life has always seem so confusing to me, it was, because I was doing it all on my own and I didn't have too! Now I have learned that all you have to do is give it to Jesus! WOW! It is so simple now and easy! Don't worry about it, give it to Jesus and he loves you for doing it. Give it all to him and all these PAH issues will go away. You still have to do your part but now you are not doing it all alone! Life is simple, give it to Jesus Christ! As I was laying on the floor and on the stretcher in the ambulance, with no vital signs, Jesus, told me I had a lot more work to do here on earth. He told me if I wanted to be big (he showed me what big was), to get up and be his instrument, servant, and conduit to spread his words of Good News to the people. I got up and I get up each day, to be his servant! I don't wake up and worry about where my next meal is coming from, or if I need gas in the car. I just wake up and talk to the Lord and ask him what he wants me to do today? Travis, me and all my friends on this Team are going to pray for you and I want you as well to pray for your self and pray several times a day! And believe when Jesus calls on you, Answer! He is listening! Always start the day with prayer!

6 days ago
A myPHteam Member

I am tagging @A myPHteam Member so he can add his support.

6 days ago
A myPHteam Member

Hello @A myPHteam Member, I am sorry that you are experiencing all these things at the same time. I know it's easier said than done, try to just focus on One Day At A Time.

Many of us here have experienced something similar and wanted you to know, You Are Not Alone Here. Please give us/me an opportunity to have someone hear your thoughts and concerns. God Bless you and may God continue to keep you.

7 days ago
A myPHteam Member

@A myPHteam Member That was an AI response that was automatically generated as an "answer" to your post. I absolutely understand your reaction to the "robot's" take on your posting. Please know that you are very welcome here...we humans who post on this site will try to listen to you and answer questions you might have.

We all deal with knowing we have a progressive and terminal illness differently. The first night I was diagnosed, I researched pre-paid cremation services! Now I know a lot more and know that people with PH are living longer and better lives. There are people on this site who have had PH for over 10 years! New drugs are constantly coming out...especially for PAH, YOUR sub-group of the illness.

7 days ago

Related Questions

View All
A myPHteam Member asked a question πŸ’­
Slc, UT

A myPHteam Member asked a question πŸ’­
Brick, NJ

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In