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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPHteam Member asked a question 💭
Brick, NJ
October 22, 2025
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How To Treat Shortness of Breath With PAH Read Article...
A myPHteam Member

I had all the same test. I have pah. I am still trying to understand. what all the results mean. your questions are helpful. thank you

October 23, 2025
A myPHteam Member

Well, the good news about being Group 1, PAH, is that it was the first subgroup to get a lot of attention from the pharmaceutical researchers and you have quite a few medications that can be VERY helpful. There are 4 different “pathways “ for approaching how to treat PAH and it is generally recommended to combine 3 if not all 4 of them.

October 24, 2025
A myPHteam Member

now that I am at my computer, I can copy and paste for you the list of diagnostic tests I had all over the course of one long busy year...except the sleep study which was done a year earlier.

Tests I had for PH Diagnosis

Bi-Heart Cath
Cat scan with contrast
Right Heart Cath x3 including Fluid Challenge in last one
Pulmonary Function tests
6 minute walks
Sleep Study
Lung Perfusion test
Traditional Echocardiogram
PH Protocol Echocardiogram with contrast
Bubble test

October 22, 2025
A myPHteam Member

There is a lot more testing that gets done. Although if your Wedge reading in your RHC is over 15, then you are Group 2 due to Left Heart Disease. Your Wedge reading might be labeled as PAWP.

I had a full year of diagnostic testing. It really is a journey. It will include a lung perfusion test, a sleep study, etc.

October 22, 2025 (edited)
myPHteam

Doctors typically start with non-invasive tests to evaluate potential PH/PAH:

• Echocardiogram (ultrasound of the heart)
• Chest X-ray to check heart and pulmonary artery size
• Electrocardiogram (ECG/EKG) to measure heart's electrical activity
• Blood tests to look for underlying causes The definitive way to diagnose PAH Show Full Answer

Doctors typically start with non-invasive tests to evaluate potential PH/PAH:

• Echocardiogram (ultrasound of the heart)
• Chest X-ray to check heart and pulmonary artery size
• Electrocardiogram (ECG/EKG) to measure heart's electrical activity
• Blood tests to look for underlying causes The definitive way to diagnose PAH specifically is through a procedure called right heart catheterization (RHC). During this test, a thin tube is guided through the skin to the heart and pulmonary arteries to measure blood pressure. A diagnosis of PAH is confirmed when mean pulmonary arterial pressure measures 20 millimeters of mercury (mm Hg) or higher.

Doctors will also determine which type of PAH you have through medical history or genetic testing, as PAH can be idiopathic (unknown cause), heritable, drug-induced, or associated with other conditions.

October 22, 2025

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