When I was fighting a serious infection they gave me a 'Pick line' in the hospital to directly I.V medicine into me wherever I happened to be, day or night. I also was given a portable I.V stand to hook up my meds no matter where I was. If it was time to infuse, I was prepared to do my treatments. Usually everyone was gracious about it too. I had to use it long term twice in my life. You have to change them every few weeks, they get dirty and have to be switched out.
August 1
I change my dressing once a week
August 4
Yes! What you're describing sounds like a central line catheter — a tube placed directly into a large vein in the chest to deliver medication continuously. This is used by some people with pulmonary hypertension, particularly those on IV prostacyclin therapy like Epoprostenol (Flolan or Veletri).
A myPHteam member shared Show Full Answer
Yes! What you're describing sounds like a central line catheter — a tube placed directly into a large vein in the chest to deliver medication continuously. This is used by some people with pulmonary hypertension, particularly those on IV prostacyclin therapy like Epoprostenol (Flolan or Veletri).
A myPHteam member shared their experience with this exact setup:
- They were admitted to the ICU to have a central line placed in their chest
- They started IV Epoprostenol therapy shortly after
- Within about two weeks, they were sent home to manage their own infusion therapy
- They learned to mix their medicine daily, change the pump and tubing, and keep everything clean to avoid infection It's a big adjustment to daily life, but many people do manage it at home successfully. If you're considering or starting this type of therapy, your care team will train you on how to handle everything safely.
Always reach out to your doctor if you notice any signs of infection or issues at the catheter site — that's really important with a central line.
August 1
Thank you I do have to do it’s well by myself
There are days I just don’t want to do it because I am so tired a lot of self-discipline
August 1