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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPHteam Member asked a question 💭
Sterling, CO

I just turned 64, so I still have some time, but I thought I would ask you all here first. Once I am Medicare-eligible, what Medicare plan will best cover the expenses of Opsumit, Adempas, and Winrevair? When I recently retired at 63, I had to work with a broker to find a private & personalized plan that would cover those costs, along with TAF and other grants. He helped me find the perfect, affordable insurance plan and I was relieved. But when I begin applying for Medicare soon, I assume I… read more

July 27 (edited)
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A myPHteam Member

Hi Steven. I went to a Medicare specialist two years ago and opted for original Medicare with AARP Plan G (UHC) as my supplemental carrier. I had Wellcare in 2025 for Part D drug coverage but in 2026 they no longer listed one of my PAH drugs on their formulary (Adempas or Opsumit). The only option in New Mexico this year that covers both is SilverScripts. I don't know if Winrevair is on their formulary.
I pay $169.60 monthly for AARP and $104.00 monthly for SilverScripts. Unfortunately, our income exceeds the Medicare limit for the standard Medicare Part B monthly premium of $202.90 for 2026 so we pay considerably more per the IRMAA guidelines. I strongly suggest you read about IRMAA because it affects Part D as well. My PAH meds are provided by CVS Specialty pharmacy, they have my credit card on file and this year my $2100.00 maximum out-of-pocket was met in January. Best wishes

July 27 (edited)
A myPHteam Member

Just to piggyback on what Heather10 said, if your not familiar or comfortable doing it yourself, have a broker do it for you. Here in NYC there is no charge for using a broker. In my case because I see 6 specialist my insurance is complicated, but I got my medication covered. Also using a foundation that helps pay for all my formulary medication.

July 27
A myPHteam Member

It’s going to vary by state..but for the most part, none of the Medicare D plans include these meds in their formularies. So it will take your doctors' filing letters of medical necessity and getting them pre-auth’d. I live in Arizona and I have Wellcare as my Medicare D plan and I have been very happy with them. While they did initially turn down a couple of requests, they ultimately approved everything I asked for on appeals. Then you have to try to get a grant to cover the co-pay portion. So you have to have the Insurance approval in order to get a grant.

Remember that each year there is a different financial hurdle to meet and once you have paid that much in co-pays and/or deductibles, you are in the “catastrophic” phase of coverage and all future co-pays for that calendar year are free. This year’s hurdle was $2100. Most PH patients make the year’s hurdle by February of each year. And grants count towards the hurdle number!

The alternative is getting the manufacturer to cover the entire cost if you can qualify financially for that.

July 27 (edited)
A myPHteam Member

I found any Medicare Advantage health insurance works do your research here in my state Fidelis Atena aren't accepted by many specialist . I'd go w MVP BCBS my choice was CDPHP I just love them not sure if available in your state. I get husge catalog gives providers specialist an another for medications an tier group they're considered.

August 5
myPHteam

Planning ahead for Medicare coverage of PH medications like Opsumit, Adempas, and Winrevair is really smart — and yes, it can feel like starting from scratch. The good news is you have time to prepare!

Medicare Part D covers prescription drugs, but coverage and costs vary widely between plans. For expensive specialty PH Show Full Answer

Planning ahead for Medicare coverage of PH medications like Opsumit, Adempas, and Winrevair is really smart — and yes, it can feel like starting from scratch. The good news is you have time to prepare!

Medicare Part D covers prescription drugs, but coverage and costs vary widely between plans. For expensive specialty PH medications, here are some important things to know:

- Part D plans differ significantly in which drugs they cover and at what tier (cost level)
- Medicare Advantage plans (Part C) sometimes bundle drug coverage and may offer different formularies
- Copay assistance programs from drug manufacturers typically do NOT apply to Medicare or Medicaid recipients, which is a key difference from your current private plan Since manufacturer copay assistance won't be available under Medicare, other resources become especially important:

- The Assistance Fund (TAF) — a myPHteam member shared that TAF covers copays for their PH medications even with Medicare
- Medicare Extra Help — a federal program that assists with Part D drug costs
- Medicare Savings Programs — can help cover premiums and other costs
- State pharmaceutical assistance programs
- The Pulmonary Hypertension Association has financial navigators who can help guide you

Working with a Medicare advisor or social worker who understands PH medications specifically would be strongly recommended before enrolling. They can compare Part D formularies for your exact medications.

July 27

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