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A myPHteam Member asked a question 💭
Garield, NJ
July 18
 · 
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A myPHteam Member

Val: You should get your care team to do a lot of the legwork for you. I doubt Medicare will directly be of help.

July 18
A myPHteam Member

Thank you Heather! I am going to call Medicare. I have been applying for grants but are close/full for Pulmonary Arterial Hypertenstion.

July 18
A myPHteam Member

Hello. Assuming you go to a PH Clinic, they should have a social worker or pharmacy liaison who can help you apply for grants or manufacturers freebies. Most cardiology offices would also have a Medical Assistant that could help you.

Also, if you are on Medicare, remember that grants count towards your “catastrophic phase” requirement.

July 18 (edited)
myPHteam

Affording PH medications can feel overwhelming, but there are several resources that may help reduce costs. Here's a summary of the main options available:

1. Copay Assistance from Drug Manufacturers
Many drugmakers offer programs to help cover the cost of PH medications, including
- United Therapeutics (tadalafil/Adcirca Show Full Answer

Affording PH medications can feel overwhelming, but there are several resources that may help reduce costs. Here's a summary of the main options available:

1. Copay Assistance from Drug Manufacturers
Many drugmakers offer programs to help cover the cost of PH medications, including:
- United Therapeutics (tadalafil/Adcirca and treprostinil/Remodulin)
- Bayer (riociguat/Adempas) — copay assistance and a charitable foundation
- Johnson & Johnson's Janssen CarePath (macitentan/Opsumit)

Contact the manufacturer of your specific medication directly to ask what's available. 2. Nonprofit & Foundation Support
Organizations like the Assistance Fund (TAF), Good Days, and the HealthWell Foundation can help cover copays. The free FundFinder app is a great tool to search for financial support options.

3. Specialty & Online Pharmacies
Specialty pharmacies cater to people with complex conditions like PH and may offer discounts. Some members have also found savings through Cost Plus Drugs.

4. Drug Discount Cards
Free discount cards like GoodRx, RxSaver, NeedyMeds, and SingleCare can lower costs at the pharmacy. As one myPHteam member shared, they got instant relief from tadalafil at a reasonable price using GoodRx. 5. Government & Insurance Programs
If eligible, programs like Medicare Extra Help, Medicare Savings Programs, and state pharmaceutical assistance programs may help. It's also worth reviewing your insurance plan carefully — sometimes a higher premium plan with lower copays saves more money overall for people managing PH.

6. Appeal Insurance Denials
If your insurance denies coverage, you have the right to appeal. One myPHteam member shared that after their PH medications were denied, they appealed and got them covered again. The Patient Advocate Foundation can help with this process.

The Pulmonary Hypertension Association also has dedicated resources and staff who can guide you toward financial assistance. Always talk to your doctor or a social worker before making any medication changes based on cost — there are options out there to help!

July 18

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