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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Just wondering if you can actually work with PAH because I don't think I can and it's kinda depressing since I've been diagnosed..

A myPHteam Member asked a question 💭
Houston, TX
April 18
 · 
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A myPHteam Member

@A myPHteam Member I love doing jigsaw puzzles. I find it makes time go by quickly and I get so focused that my mind is off any symptoms for that period of time.

April 21
A myPHteam Member

I like doing adult coloring books. Very relaxing. I also like crossword puzzles.

April 21
A myPHteam Member

Yeah I'm way better than I was when I was hypoxic and didn't know it like literally I was killing myself to make it through a shift at work but I had no idea what was wrong I just kept pushing thru and my manager told me to go to er I finally did and then I rushed away to another hospital to pulmanary ICU and I guess I'd been going hypoxic for while pushing thru I'm lucky to be alive but I applied for disability like forever ago but someone told me it takes forever to get approved I just hate being reliant on everyone and I did adopt a dog so I am somewhat more active but I still need to roll my oxygen with me on her short walks hhmmm I guess I need another low impact hobby so I don't get so depressed 😔

April 21
A myPHteam Member

With me I get tired easily, barley can stand up a long time. I don't think I can work don't feel bad u not along.

April 21
myPHteam

Can you work with pulmonary arterial hypertension?

It's completely understandable to feel depressed about how PAH affects your ability to work. Many people with PAH do continue working, but it really depends on your individual symptoms, disease severity, and the physical demands of your job.

PAH can make daily activities Show Full Answer

Can you work with pulmonary arterial hypertension?

It's completely understandable to feel depressed about how PAH affects your ability to work. Many people with PAH do continue working, but it really depends on your individual symptoms, disease severity, and the physical demands of your job.

PAH can make daily activities increasingly difficult. A myPHteam member shared: "I get tired easily and short of breath when I go up stairs mostly. When I try to walk for exercise, I'm finding it harder to do because of shortness of breath."

The key is working closely with your doctor to manage your symptoms. Proper treatment can make a significant difference. One member said: "My heart failure is reversing itself because my PAH is now better managed."

Here are some things that might help:

- Talk openly with your doctor about how PAH is affecting your daily functioning and work capacity
- Keep a journal of your symptoms and what activities trigger them
- Explore whether your current treatment plan needs adjustment
- Consider whether workplace accommodations might help you continue working
- Ask about referrals to specialists who can support your quality of life

Remember that PAH treatment aims to improve quality of life and slow disease progression. With proper management, many people find they can do more than they initially thought possible. Give yourself time and patience as you adjust to this diagnosis.

April 18

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Middletown, DE
March 13, 2020

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