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A myPHteam Member asked a question πŸ’­
Cheyenne, WY

Hi everyone! I hope everyone is having a great day! I know that a person's prognosis varies depending on so many different factors, but can anyone please tell me what the typical lifespan is for someone who has PH? I mean, about how long can someone plan to live with this disease? And does anyone know what the typical lifespan is for a healthy adult vs someone who has heart failure, COPD, or sleep apnea? I know that it may be a difficult question for some people, and some people may not know or… read more

December 8, 2022 (edited)
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Answer Summary

Members rallied around the question of life expectancy with PH, sharing personal timelines that ranged from being told less than a year to... Read more

Members rallied around the question of life expectancy with PH, sharing personal timelines that ranged from being told less than a year to living 15 or more years after diagnosis. Several members emphasized that outcomes depend heavily on type of PH, other health conditions, how well someone responds to treatment, and having specialists like a PH-trained pulmonologist on your care team. A recurring theme was that no one has a set expiration date, and that staying proactive, advocating for yourself, and focusing on quality of life matters most.

A myPHteam Member

Holly Sue, in her final lines, hit it square. QUIT looking for a death sentence!! ONLY God knows your future. Why waste time, day after day, worrying about when the day is here. Get off it -- live life -- don't waste it! Once this moment is gone, you'll never get it back. A very sincere friend, Rachel

July 14, 2023
A myPHteam Member

My doctor told me that if I ever see an expiration date anywhere on my body to get in to see her immediately!! She has assured me that I will continue to live a full life as long as continue my drug regimen and keep living my life! With a good attitude and a good relationship with your doctor I believe that you can live and thrive!

June 23, 2023
A myPHteam Member

Not to be mean. Ive had 6 heart attacks, a brain tumor and a cancerous cyst on my uterus. Im going to take every minute I can get. Ive had multible cases of staph on my legs and in my sinuses. Now I have ph to add to my list. Do you really think I want to know what they think my life span will be? Im going to stay on this earth to torture nurses as long as I can. I was a cardiopulmonary tech. I worked hospitals and hospice for many years. Get you a good doctor. Do your own research. Take life on. Then live!!!

September 17, 2023
A myPHteam Member

I'm sixty four now i'm hoping I get another ten good years. With modern medicine and by the grace of godβ£οΈπŸ™πŸ™πŸ™

May 29, 2023
A myPHteam Member

I was diagnosed with cancer in 2001 and the probabilities for my diagnosis was about six months. I was officially diagnosed with PAH in 2007. I probably had it for about 3 years before diagnose. The probabilities for that diagnosis was about 10 years. Both of those date have long come and gone. I feel better today than I did in 2007 or even in 2019. As a friend of mine reminds me "No one has an expiration date on the bottom of their foot." I add to that thought that numbers are numbers and can be construed in many different ways. There are a number of "long time survivors" so don't let anyone tell you how long you have to live. Just live today to the best of your ability.

January 19, 2024

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