Hi everyone! I hope everyone is having a great day! I know that a person's prognosis varies depending on so many different factors, but can anyone please tell me what the typical lifespan is for someone who has PH? I mean, about how long can someone plan to live with this disease? And does anyone know what the typical lifespan is for a healthy adult vs someone who has heart failure, COPD, or sleep apnea? I know that it may be a difficult question for some people, and some people may not know or⦠read more
Answer Summary
Members rallied around the question of life expectancy with PH, sharing personal timelines that ranged from being told less than a year to... Read more
Holly Sue, in her final lines, hit it square. QUIT looking for a death sentence!! ONLY God knows your future. Why waste time, day after day, worrying about when the day is here. Get off it -- live life -- don't waste it! Once this moment is gone, you'll never get it back. A very sincere friend, Rachel
My doctor told me that if I ever see an expiration date anywhere on my body to get in to see her immediately!! She has assured me that I will continue to live a full life as long as continue my drug regimen and keep living my life! With a good attitude and a good relationship with your doctor I believe that you can live and thrive!
Not to be mean. Ive had 6 heart attacks, a brain tumor and a cancerous cyst on my uterus. Im going to take every minute I can get. Ive had multible cases of staph on my legs and in my sinuses. Now I have ph to add to my list. Do you really think I want to know what they think my life span will be? Im going to stay on this earth to torture nurses as long as I can. I was a cardiopulmonary tech. I worked hospitals and hospice for many years. Get you a good doctor. Do your own research. Take life on. Then live!!!
I'm sixty four now i'm hoping I get another ten good years. With modern medicine and by the grace of godβ£οΈπππ
I was diagnosed with cancer in 2001 and the probabilities for my diagnosis was about six months. I was officially diagnosed with PAH in 2007. I probably had it for about 3 years before diagnose. The probabilities for that diagnosis was about 10 years. Both of those date have long come and gone. I feel better today than I did in 2007 or even in 2019. As a friend of mine reminds me "No one has an expiration date on the bottom of their foot." I add to that thought that numbers are numbers and can be construed in many different ways. There are a number of "long time survivors" so don't let anyone tell you how long you have to live. Just live today to the best of your ability.