I was diagnosed back in Dec of 2020. I had a PASP of 65mmhg and mPSAP of 35 mmhg. With these numbers how would I be classified?
You have valid questions that I myself didnt know till I had alice chase me down the rabbit hole and learned a whole bunch. There are 5 different groups of PH. Group 1- is Pulmonary Arterial Hypertension (PAH). That one is the most severe and progressive form of PH. It's also the ONLY ONE of the 5 types that deals with Right sided heart failure, not the left side like the other 4 groups. The way that PAH is confirmed is through something called a Right Heart Catherization (RHC). If you have PAH group 1, that is the only way they can verify that particular group. You just giving some numbers won't help anyone tell you whay category you are, that's where the PH specialists come in. Its very important to see a PH specialist specifically. Not just a pulmonologist, not just a cardiologist. You want someone who is board certified in Pulmonary Medicine and Pulmonary conditions because depending on which group you have, if you are given the wrong medications, it could kill you. If you need to find the PH specialist closest to you, if you go to my profile, I posted a link on there that can tell you the closest one to you. Good luck
Hi Mike. PAH is 1 form of PH but as of now, none of the PH forms are curable...BUT...It is simply too soon to say if Winrevair will be determined to be curative or not and right now, Winrevair is only available to people with PAH. It is in clinical trials for becoming approved by the FDA for people who are mainly Group 2 PH with some crossing over into PAH. I am primarily post-capillary disease but do have some pre-capillary disease as well, so I am hoping I will qualify to participate in the clinical trial.
And as a note of encouragement, at my first diagnosing RHC, my mean pressure reading was, I think, 36 or 38. With more aggressive management of my heart issues plus a lot of changes in my diet, my mean numbers are generally now in the low 20s. I was initially described as "Moderate" and I am now considered as "Mild" I hope your care team will be able to successfully lead you to better numbers .
How serious is your pulmonary hypertension compared to pulmonary arterial hypertension, and what do your pressure measurements mean?
PAH is actually one of five types of pulmonary hypertension (PH), so they're related but not the same condition. PAH specifically refers to high blood pressure in the lung arteries that isn't Show Full Answer