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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I don't, and was told I didn't need one.

January 27, 2025
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Answer Summary

Members overwhelmingly confirmed that having a cardiologist is common and beneficial for those with PAH, with many describing integrated care... Read more

Members overwhelmingly confirmed that having a cardiologist is common and beneficial for those with PAH, with many describing integrated care teams that include both pulmonologists and cardiologists who work together to monitor both lung and heart function. Several members shared their clinic setups, which often include PH specialists, nurse practitioners for coordination, and regular testing like echocardiograms and right heart catheterizations, with some noting the importance of having specialists experienced in both pulmonary and cardiac care since PAH affects the right side of the heart. A recurring theme was gratitude for comprehensive teams and the reassurance that while PH specialists should have backgrounds in both areas, having a dedicated cardiologist provides additional expertise, especially for those with comorbidities like heart failure, valve issues, or congenital heart defects.

A myPHteam Member

I have heart disease and have a cardiologist. My pulmonary specialist and cardiologist both consult with each other.

January 30, 2025
A myPHteam Member

A true PH specialist has to know both heart and lung. But I found that having the PH specialist PLUS a regular cardiologist and a regular pulmonologist is very helpful and all 3 share information with each other.

January 27, 2025
A myPHteam Member

Yes, I have a Cardiologist. He is part of my PAH clinic as well as three Pulmonologists who all specialize in PAH. I see them on rotation every 6-9 months. There is also a PAH trained RN who does all the coordinating and is always on the other end of the phone to handle any concerns I may have, bloodwork requistions and arranges for all testing such as Echocardiograms and RHC among others. Couldn't ask for a better team. They also work with my Rheumatologist/Scleroderma Specialist who is also well versed in PAH, and is considered part of my team. All information is shared.

January 27, 2025
A myPHteam Member

I go to a Pulmonary/Cardiology Clinic where I see a Pulmonary Doctor and a Cardiologist. Having PAH has caused me to have right side heart failure. Both doctors work hand in hand to give me the best care designed for me. I see the doctors atleast twice a year and the rest of the time I see the nurse practioner (about twice a year ). The only down thing for me is the travel time as it takes about an hour to get there. If I were younger it would be no problem, but my husband and I are both in our 70's so driving on the expressway is a bit scary. The joys of getting old...lol

January 27, 2025
A myPHteam Member

I do

February 13, 2025

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