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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What is a common rate of progression with PH, after making life style adjustments?

A myPHteam Member asked a question 💭
Rochester, MN

Dxed 2024. Took me nine months to see a PH specialist, who did a complete workup, but no clarification of type, or stage, or recommended follow-up.

February 24
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Reactions
A myPHteam Member

You should make a point of asking for your subgroup classification. That would determine what follow up you should be getting.

PH isn’t staged like other progressive illnesses. I am Group 2, Class 3 but still considered “mild”.

Your clinical notes in your portal might provide some answers for you. But it sounds like you need to push your specialist for better communication.

February 24
A myPHteam Member

I think you are right!!!

February 24
myPHteam

How quickly does pulmonary hypertension progress after diagnosis and lifestyle changes, and how often should monitoring occur?

Pulmonary hypertension is a progressive disease, meaning it can get worse over time. However, the progression varies from person to person. You might experience symptoms that come and go, with some Show Full Answer

How quickly does pulmonary hypertension progress after diagnosis and lifestyle changes, and how often should monitoring occur?

Pulmonary hypertension is a progressive disease, meaning it can get worse over time. However, the progression varies from person to person. You might experience symptoms that come and go, with some good days mixed in with harder ones.

The rate of progression depends on several factors, including your specific type of PH, how well you respond to treatment, and your overall health. While there's no cure for most types of PH, treatment and lifestyle modifications aim to manage symptoms and slow progression.

For monitoring frequency, it's essential to see your healthcare provider regularly. Your doctor will track your heart health through several tests:

* Echocardiograms to assess how well your heart is working
* Six-minute walk tests to measure your exercise capacity
* Right heart catheterization, typically done once a year, to evaluate blood flow and pressure

Your healthcare provider will combine these test results with your WHO functional class to determine if your treatment plan needs adjustment. Staying on top of your care with regular follow-ups helps you maintain the best possible quality of life at every stage.

Keep your doctor updated about how you're feeling between appointments, especially if you notice new symptoms or changes in your condition.

February 24

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