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I recently got off Uptravia and am 48 mcg of Tyvaso dpi 4x’s a day. Are there others out there taking this and what has been your experienc?

A myPHteam Member asked a question 💭
Santa Rosa, CA
May 30, 2025
 · 
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A myPHteam Member

Hi DMC. I am on a drug study for Ralinepag, an oral once a day prostacyclin analog. This is a double blind study so I don't really know if I'm on the placebo but I did have some side effects early on. It's been two months now and I have titrated up weekly from 50 mcg to 500 mcg and I believe the goal for me is 800 mcg. I have moderate IPAH with a PAP on last RHC in 2022 at 48. Do you think the Tyvaso is helping?

May 30, 2025
A myPHteam Member

I was on the Tyvaso dpi for about a year. Don’t think it helped me much. My numbers got worse. And I developed a big aversion to it. Really irritated my lungs and I hated the 4x/day. I switched to Sotatercept and my numbers are almost normal.

June 7, 2025
myPHteam

Tyvaso is a commonly prescribed prostacyclin analog that is inhaled through a special device. It works by helping blood vessels relax and open up, which is important for managing pulmonary hypertension.

Many myPHteam members have shared their experiences with transitioning between medications like Uptravi and Tyvaso. The Show Full Answer

Tyvaso is a commonly prescribed prostacyclin analog that is inhaled through a special device. It works by helping blood vessels relax and open up, which is important for managing pulmonary hypertension.

Many myPHteam members have shared their experiences with transitioning between medications like Uptravi and Tyvaso. The inhaled delivery method can be more convenient for some people compared to continuous infusions that require needles. While everyone's experience is different, it's important to work closely with your healthcare provider to monitor how you're responding to the 48mcg dose taken 4 times daily. They can help adjust your treatment plan if needed and address any side effects you may experience.

Consider tracking your daily symptoms and responses to the medication to share with your healthcare team during follow-up appointments.

May 30, 2025

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