Answer Summary

Members with PAH and scleroderma shared their experiences with low iron levels, with many describing how the combination of autoimmune... Read more

Members with PAH and scleroderma shared their experiences with low iron levels, with many describing how the combination of autoimmune conditions can interfere with iron absorption even when taking daily supplements. Several members mentioned practical next steps like scheduling GI scopes to rule out bleeding, tracking ferritin and transferrin levels closely, and choosing between oral iron (which some found caused temporary constipation that resolved with more fruits and vegetables) versus infusions when absorption becomes an issue. A recurring theme was the debilitating fatigue that comes with low iron, the importance of regular monitoring, and mutual encouragement as members navigated these challenges together.