Answer Summary
Members rallied around someone struggling to find adequate pulmonary and cardiac care in San Antonio, offering practical advice to search for... Read more
Look to see if there are others in your area and see what others have said about them. It might be worth traveling a bit if you can you get good treatment.
Oh my gosh I understand completely! I was seriously just waiting to die because my cardiologist at the time kind of didn't seem to care and lead me to believe that I could not improve my heart failure. I saw a commercial for a cardiologist in a city about 2 hrs away and made an appt. He then referred me to a pulmonologist in the same building and shortly after I was diagnosed with pulmonary hypertension and on treatment which improved my symptoms significantly although I still deal with fatigue but at least I can breath so much better now and I just had my first echocardiogram since beginning treatment and they said my heart function has improved. My point is that not all doctors are for everyone. If you are not getting the care you need at one definitely move on to another. It truly can mean the difference between life and death.
Yes Denise is correct. Go to the Pulmonary Hypertension Association website. They have a list of clinics and/or doctors that treat pulmonary hypertension and are specialists.
Ppl must advocate for themselves these days . Medical field is going to crap ! Try researching your specialist in your area want a 5 star look at ppls comments give you good idea on the doctor. Sometimes it's best to seek out another's opinion.
Hi Beth. Yes, I too can’t believe I’m having so much trouble getting care. Kim now trying to get a referral to see a PAH doctor. I’m praying this will be successful. I’ll keep you posted. Hope you’re doing well yourself. I’m