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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 3, 2025
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Answer Summary

Members rallied around someone struggling to find adequate pulmonary and cardiac care in San Antonio, offering practical advice to search for... Read more

Members rallied around someone struggling to find adequate pulmonary and cardiac care in San Antonio, offering practical advice to search for pulmonary hypertension specialists through the Pulmonary Hypertension Association website, read online reviews, and consider traveling to nearby teaching hospitals or PH clinics like Mayo Jacksonville if needed. Several members emphasized the critical importance of self-advocacy in today's healthcare system, with one sharing a powerful story of how switching doctors and traveling two hours led to a proper PH diagnosis, effective treatment, and significant heart function improvement after previously feeling abandoned and hopeless. A recurring theme was that finding the right doctor can truly be life-changing, and members should never settle for care that feels dismissive or inadequate.

A myPHteam Member

Look to see if there are others in your area and see what others have said about them. It might be worth traveling a bit if you can you get good treatment.

April 3, 2025
A myPHteam Member

Oh my gosh I understand completely! I was seriously just waiting to die because my cardiologist at the time kind of didn't seem to care and lead me to believe that I could not improve my heart failure. I saw a commercial for a cardiologist in a city about 2 hrs away and made an appt. He then referred me to a pulmonologist in the same building and shortly after I was diagnosed with pulmonary hypertension and on treatment which improved my symptoms significantly although I still deal with fatigue but at least I can breath so much better now and I just had my first echocardiogram since beginning treatment and they said my heart function has improved. My point is that not all doctors are for everyone. If you are not getting the care you need at one definitely move on to another. It truly can mean the difference between life and death.

May 3, 2025
A myPHteam Member

Yes Denise is correct. Go to the Pulmonary Hypertension Association website. They have a list of clinics and/or doctors that treat pulmonary hypertension and are specialists.

April 20, 2025
A myPHteam Member

Ppl must advocate for themselves these days . Medical field is going to crap ! Try researching your specialist in your area want a 5 star look at ppls comments give you good idea on the doctor. Sometimes it's best to seek out another's opinion.

April 20, 2025
A myPHteam Member

Hi Beth. Yes, I too can’t believe I’m having so much trouble getting care. Kim now trying to get a referral to see a PAH doctor. I’m praying this will be successful. I’ll keep you posted. Hope you’re doing well yourself. I’m

April 12, 2025

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