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Heart a workout trying to find cause of my PH so he will know how to treat it. Does this sound accurate? I have only had this test in leg artery.
Has anyone else had this type of surgery for testing?

March 1, 2025
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Answer Summary

Members rallied around someone preparing for their first neck catheterization to diagnose pulmonary hypertension, sharing reassuring personal... Read more

Members rallied around someone preparing for their first neck catheterization to diagnose pulmonary hypertension, sharing reassuring personal experiences and detailed explanations of what to expect during the procedure. Several members broke down how the test works, including the different entry points (neck, arm, or groin), the pressure numbers doctors look for to determine PH severity and type, and the wedge pressure test that reveals whether left heart disease is the underlying cause. A recurring theme was compassionate encouragement, with members emphasizing that the procedure is safe, not painful, and that understanding the numbers can empower patients to advocate for themselves and track their progress over time.

A myPHteam Member

I have had 4 heart catheterizations: 2 through the arm, 1 through the groin and my last one through the neck. Your report will show several pressure numbers: systolic, diastolic, and mean. These are sometimes not labeled as such in your report but might get written as something like 35/15/24 Systolic numbers over 20 are now regarded as having PH though it wasn't long ago that the magic number was 25. Anything below 40-45 is considered mild and depending on your other factors, may not even mandate immediate treatments. I was 56 in my first diagnostic cath (My echo number was 78!) and with treatment and lifestyle changes I am now in the low 40s. Diastolic range should be under 10. I average 14-17. Mean should be 20 and I am generally around 24.

Then there is also a wedge (PAWP) pressure number. A wedge number over 15 indicates the PH is caused by left heart disease. If your wedge number is 14 or 15 but you have a history of heart issues, they should give you a fluid challenge test during the cath to make sure the Wedge number is accurate. My wedge is normally 14 but the fluid challenge test brought it up to 28. (I have a history of both left and right heart failure plus occasional Afib.) Not all doctors are experienced with doing the Fluid Challenge. If you have a history of heart issues, ask your doctor ahead of time if he's prepared to do one if your wedge is "on the cusp".

None of this is painful or even uncomfortable.

March 1, 2025 (edited)
A myPHteam Member

Hi! I've had RHC twice. Both times they have gone through my arm. Not terrible, and doesn't take long

March 4, 2025
A myPHteam Member

I am not a medical professional. I was told by my PH specialist that in Europe the most common entry point is the arm and in the US it historically has been the groin but that the younger and more current doctors use the neck. The groin is always prepped just in case there is blockage in the arm or neck. The groin has the easiest access but the greatest distance for the wires to travel and the longest recovery period. In my 3rd cath I was getting a CardioMEMs device implanted so the doctor needed the larger channel that would accommodate the device. My first two through the arm were at my request because I read the European articles on perceived benefits of that route. Now having my last one through the neck, I am a believer that the neck is the way to go!

March 1, 2025 (edited)
A myPHteam Member

By the way, it's called a "wedge" reading because the doctor "wedges" in a tiny latex balloon into your artery and then measures the pressure against that balloon. Sometimes they can't get the balloon in as far as ideal which can slightly throw off the wedge reading which is why they are supposed to be prepared to do the Fluid Challenge if Left Heart Disease is suspected..

March 1, 2025
myPHteam

Yes, this is completely accurate! Right heart catheterization is actually the best test for diagnosing PH and determining the best treatment plan. During the procedure, a thin flexible tube (catheter) can be inserted through either your neck, groin, or arm - all are common entry points. You'll be sedated during the Show Full Answer

Yes, this is completely accurate! Right heart catheterization is actually the best test for diagnosing PH and determining the best treatment plan. During the procedure, a thin flexible tube (catheter) can be inserted through either your neck, groin, or arm - all are common entry points. You'll be sedated during the procedure for comfort. The "workout" your doctor mentioned likely refers to measuring several important factors: the pressure in your heart chambers, how hard your heart is working to pump blood through your lungs, oxygen levels in your blood, and how effectively your heart is pumping. These measurements create what's called your hemodynamic profile, which helps determine your specific type of PH and its severity. This information is crucial for developing the right treatment plan for you. Many myPHteam members have undergone this procedure - it's actually very common and most people with PH will have at least one right heart catheterization. While it may sound intimidating, remember that you'll be in the hands of specialists who perform this procedure regularly.

March 1, 2025

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