AnneWoodward I have been on Remodulin for 13 years, and it takes time to get used to a number of things. First is digesting a PAH diagnosis and how it's affecting your life. Then there is the Remodulin itself and it's effects. Learning how to work the pump and supplies. Then there is what you are asking about which is dealing with the subcutaneous site which is what I take it you have. If you have an IV pump I can't speak much about that. But I have used the old MS3 pump and am now on the RemUnity pump since October 2024 I can help you. If you contact your specialty pharmacy who sends you your Remodulin supplies ask for what is called an "IV3000 moisture responsive cathedar dressing" made by smith&nephew. The ones I get are 2 3/8"X 2 3/4" in size. It is very helpful to keep your Cleo cathedar (or other cathedar's as well) in place longer and cleaner. You can either start using an IV3000 with a new cathedar site or put one on an older cathedar site. Either way you need to clean the surrounding area around the cathedar with an alcohol pad, followed up with a skin barrier pad which will allow the IV3000 to stick better. I use a small pair of scissors to cut a small hole large enough to allow the cathedar inlet to pass thru the IV3000 but not so large that it doesn't hold down on the cathedar. (I think I have a picture of an IV3000 to attach for you to see but I have to find it.) Either way, the dressing helps greatly and also helps to protect it when showering along with the normal shower Hydroseal plastic covering. I started out only getting my cathedar to stay on for about 2 weeks years ago. Now, I am able to go 6-8 weeks without infections, pain etc. The longer you can keep a site viable, the less drug pain you will have until you finally have to start in a new location. But if the site gets too painful contact your doctor or your specialty pharmacy for specific instructions. I hope this helps you some. You can do this, but it can be frustrating at times. I wish you the best.

John,
I am glad you are doing so much better. It is such good news when members share a positive experience equalling a improvement in health, due to a treatment protocol finally found that helps. Hearing news like you just shared can have a very important purpose for this group. It gives others hope.

I personally could only handle the site pain for 5 months. I finally went to the hospital and said either iv pump or remove it altogether. Fir me subcutaneous was torture not treatment. The switched me around Christmas time. What a difference. On subcutaneous I was at a dosage of 25. Of that my body was absorbing ???%. Now I'm at 80 heading to 98 and in combo with Winrevair I've gone from only able to walk maybe 100 feet before gasping for breath to a mile with no oxygen supplements except at altitude or sleep 😁 i thank God for these treatments