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October 21, 2024
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Members rallied around someone whose boyfriend was suffering from a severe cough alongside pulmonary hypertension, with the most urgent advice... Read more

Members rallied around someone whose boyfriend was suffering from a severe cough alongside pulmonary hypertension, with the most urgent advice being to confirm his WHO group classification since Group 1 and Group 3 treatments can conflict, and to ensure his upcoming right heart catheterization distinguishes between pre-capillary and post-capillary disease. Several members shared that certain medications like Tadalafil and Lisinopril can cause debilitating coughs, while others found relief through codeine cough syrup, though they cautioned to always check with a PH specialist since some cardiac patients cannot safely take codeine or decongestants. A recurring theme was the critical importance of getting his sleep apnea treated with a CPAP as directed, avoiding caffeine and decongestants, and working closely with a trusted PH care team to navigate the complex interplay between sleep apnea and pulmonary hypertension.

A myPHteam Member

I know we're all piling info and opinions on you and it must be overwhelming. Be sure to check EVERYthing out with your PH doctor. For example, some PH patients cannot take Codeine and it can limit your partner's cardiac output. PH is one of those chronic illnesses that can be negatively impacted by an awful lot of factors. Best to check out every single RX and OTC medication and/or supplement with your new specialist. And absolutely NO cough medicine with a D (for Decongestant) in it's name.

All caffeine is bad, so make him soothing herbal teas instead of green or black tea. (That also means no coffee, cola or chocolate. I do cheat with a bit of chocolate once in a while)

October 25, 2024 (edited)
A myPHteam Member

Debra, I was tested for whooping cough, I had the bacteria for it and was treated. My cough isn't nearly as bad as before, but is still there. The cough syrup works gor me, however, I don't take it everyday and it's been a bit since I have used it. Each of us are different and should always touch base with our Dr.

October 25, 2024
A myPHteam Member

Debra, I first had the in home oximeter test and my ins paid for nocturnal O2 after that. You are right though I believe for 24/7 O2 it needs to be in a lab.

October 24, 2024
A myPHteam Member

Lacey,
It's my understanding insurance won't approve CPAP or oxygen without an in lab sleep study where they monitor apneas and oxygen levels, including need for oxygen administration.

October 24, 2024
A myPHteam Member

Lacey: If your boyfriend's PH is attributed to his Sleep Apnea, he is Group 3, NOT Group 1. That is very important as the medications used to treat Group 1 conflict with how Group 3 patients should be treated. Here's a cut and paste.: Obstructive Sleep Apnea and Pulmonary Hypertension: An Intricate Relationship. Historically, OSA was categorized under Group 3 PH, signifying a direct relationship between these two conditions. This relationship is complex, with OSA contributing to the development and progression of PH.

And I don't know which medications he is on as of now, but some can produce a severe cough. I had to stop Tadalafil due to a 24/7 debilitating cough.

BUT PLEASE, have your PH specialist confirm what group he is actually in so as not to improperly treat him.

October 21, 2024

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