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August 4, 2024
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Answer Summary

Members shared their experiences navigating anesthesia risks for procedures like colonoscopies, endoscopies, and surgeries when living with... Read more

Members shared their experiences navigating anesthesia risks for procedures like colonoscopies, endoscopies, and surgeries when living with pulmonary arterial hypertension, with several describing how their specialists required additional right heart catheterizations or warned of life-threatening complications on the table. Many members offered practical strategies, including requesting a cardiovascular anesthesiologist with specialized PAH training, advocating to work with the same anesthesiologist from a previous successful procedure, and exploring alternative screening tests like FIT tests when traditional colonoscopies pose too much risk. A recurring theme was the frustration of feeling misunderstood by medical staff unfamiliar with PAH-specific anesthesia concerns, balanced by determination to self-advocate, wait until pressures stabilize, and seek care at larger hospitals equipped to handle complex cases.

A myPHteam Member

Hi Kris2, My Doctors want me to hold off as I said earlier but they also said that if I have the procedure done that I should have it done with a cardiovascular anesthesiologist. They have a few more years of schooling and deal with PH /PAH. Not all hospitals have them on staff but its worth looking into. Good luck ❤️🙏🏻

August 6, 2024
A myPHteam Member

Kris2, I've had a pacemaker change out, very knowledgeable anesthesiologist at the heart hospital, a colonoscopy at the hospital here. I'm now trying to get my pressure numbers down enough to do a hip replacement. I did well on the first two. I will go to a larger hospital near Dallas. The doctor said I could go ahead and have it but it's risky. So I will wait to try and get the numbers down. This PAH Is not our friend. I'm almost 82. I hope this helps your fear.

August 5, 2024
A myPHteam Member

Well I went under anesthesia for broken femur in Nov.. No problem. Now I am in need of knee replacement not scheduled as of yet, but I have a colonoscopy and an upper GI to be done at the same time scheuled for mid Sept.. Because of the risk w / anesthesia, I keep stating that I want to request the same anesthesiologist whom I had in Nov. Well apparently such a request has never come up. Dr's hosp. staff just are too bewildered to provide any type of answer. They look at me like I am a 20 ft. alien from some other planet. I've been told that all anesthesiologist would have the same knowledge about PAH and anesthesia risk. They don't understand where I'm coming from. I already had the one guy and didn't kick the bucket so I have a little more faith in him. So why can't I be the first to request an anesthesiologist? Just because it hasn't been done previously perhaps it's time that that changes, as with everything else in life that changes. The anesthesiology dept. doesn't keep an office or any way to contact them. Thanks for listening or reading actually.

August 5, 2024
A myPHteam Member

Thank you for sharing

August 4, 2024
myPHteam

For individuals with pulmonary hypertension (PH), undergoing anesthesia and sedation can be particularly risky. Here are some reasons why your doctor might have advised against procedures involving sedation:

- Heart and Lung Function: PH affects the heart and lungs, increasing the risk of complications during and after Show Full Answer

For individuals with pulmonary hypertension (PH), undergoing anesthesia and sedation can be particularly risky. Here are some reasons why your doctor might have advised against procedures involving sedation:

- Heart and Lung Function: PH affects the heart and lungs, increasing the risk of complications during and after surgery.
- Right Ventricular Failure: There's a high risk of right heart failure, where the heart struggles to pump blood to the lungs.
- Anesthesia Risks: Certain anesthesia drugs can affect breathing, heart rate, and blood pressure, which can be dangerous for someone with PH.

Your doctor is likely being cautious to avoid these potential complications. Always discuss any concerns with your healthcare provider for personalized advice.

August 4, 2024

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