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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
March 25, 2025
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Answer Summary

Members shared their experiences with colonoscopies and endoscopies while managing pulmonary arterial hypertension, with most reporting... Read more

Members shared their experiences with colonoscopies and endoscopies while managing pulmonary arterial hypertension, with most reporting successful procedures when proper precautions were taken. Several members emphasized the importance of having procedures done in a hospital setting with a specialized anesthesiologist who is informed about PAH, noting specific concerns like blood pressure drops, difficulty coming off Propofol (with Fentanyl suggested as an alternative), and potential need for intubation depending on individual health factors. A recurring theme was the value of open communication with both the procedure team and pulmonology specialists about PAH status, with members encouraging continued health screenings while acknowledging that each person's risk factors and medical history require personalized decisions.

A myPHteam Member

I've had a number of procedures under light sedation since my diagnosis. However, when I had to have neck surgery in 2022, the neurosurgeon required medical clearance from both the cardiologist and the pulmonologist. It's important to clearly communicate to the doctor doing the procedure, the nursing staff, and the anesthesiologist that you have PAH. Each of us are unique and have our own health histories and comorbidities. Depending on what yours are will determine your treatment plan. That being said, EGDs and colonoscopies are simple, safe procedures for most of us. It is important to continue health screenings. Before my last colonoscopy, the gastroenterologist told me that colon cancer, like cervical cancers can be avoided with early detection.

March 27, 2025 (edited)
A myPHteam Member

No problem, they bring in a specialized Anesthesiologist and smooth sailing 😉

March 26, 2025
A myPHteam Member

Have a conversation with your pulmonologist/ ph specialist about how you feel. Everyone is different. For me, I have to be intubated to control my lungs, my stats drop if not. My nurse at my pcp's took it out of my chart so I won't be having either anytime soon.

March 25, 2025
A myPHteam Member

Oh...and the same ENT said not to have an endoscopy to check on an ulcer that I have. That is due to the anesthesia risk. She said there are other ways to monitor it.

March 25, 2025
A myPHteam Member

Thank you

March 25, 2025

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