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A myPHteam Member asked a question 💭
East Kootenays, British Columbia
June 12, 2024
 · 
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A myPHteam Member

I’m updating my health status- I have PAH. Really working on getting off the oxygen. I’m also on Adempas and myrbetriq which I understand is good for PAH. If anyone out there has gotten OFF oxygen I would like to chat. I told everyone that I am living until I am 86!!!!!So there PAH leave me alone!! Great weekend upcoming to you all- God is my strength!!
..Sharon

June 14, 2024
A myPHteam Member

I use oxygen almost all the time if I walk 20 feet have to wear it sucks

June 13, 2024
A myPHteam Member

Yes. I have a cpap I use every night. Its at at high setting. I am not on oxygen.

June 13, 2024
A myPHteam Member

I too am hypoxic as well as having PH. I also have restrictive parenchymal lung disease and exchange gasses at just 52%. My PO2 from my arterial blood draw with oxygen use is only 71% a couple weeks ago.
Wishing you well, any questions just reach out to me.

June 12, 2024
myPHteam

People with pulmonary hypertension (PH) often experience hypoxia. Coping strategies include:

- Oxygen Therapy: Some individuals require supplemental oxygen, which can be used intermittently or 24/7, depending on the severity of their condition
- Pulmonary Rehabilitation: Programs that teach breathing exercises and ways to Show Full Answer

People with pulmonary hypertension (PH) often experience hypoxia. Coping strategies include:

- Oxygen Therapy: Some individuals require supplemental oxygen, which can be used intermittently or 24/7, depending on the severity of their condition.
- Pulmonary Rehabilitation: Programs that teach breathing exercises and ways to improve fitness.
- CPAP Machines: Used by those with sleep apnea to help breathe at night.
- Support Networks: Engaging with communities like myPHteam for advice and emotional support.

Would you like more details on any of these strategies?

June 12, 2024

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