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A myPHteam Member asked a question 💭
Manalapan, NJ

Coordination or any other way, and if any changes on your MRI since pulmonary hypertension.
Thanks,
Joan from NJ

July 21, 2023
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Answer Summary

Members responded to a question about whether pulmonary hypertension affects the brain, with many sharing personal experiences of brain fog,... Read more

Members responded to a question about whether pulmonary hypertension affects the brain, with many sharing personal experiences of brain fog, dizziness, memory loss, and coordination issues that they attribute to a combination of low oxygen levels, medications, and related conditions like sleep apnea and small vessel disease. Several members described practical strategies that have helped, including using oxygen therapy consistently, taking Prevagen as a supplement, participating in pulmonary rehabilitation, and keeping physical reminders like sticky notes to manage forgetfulness. A recurring theme was the challenge of distinguishing whether symptoms stem from the disease itself, medication side effects, lack of sleep, or simply aging, with many members finding reassurance in knowing they are not alone in these struggles and encouraging each other to continue their treatments despite frustrating side effects.

A myPHteam Member

I have so much fog forgetfulness confusion and uncoordinated my ability to talk so yes alot of problems.

October 28, 2023
A myPHteam Member

My memory is not the same
I forget alot these days. I keep asking the same question sometimes and its scarey.

October 30, 2023
A myPHteam Member

I was told that there lack of oxygen will cause memory issues.

October 25, 2023
A myPHteam Member

I have days of brain fog, what I call it. Just can't seem to get it together. I doubt it's ph or any other disease but lack of good sleep, over doing something the day before, medications, or just one of those days.

July 31, 2023
A myPHteam Member

I don’t know if it’s getting older or PH or my meds but I forget a lot in the past 6 months. Things I knew are hard for me to recalll

December 1, 2023

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