I take sildenifil and plaquenil because I have Sjogrens and other autoimmmune issues and Evoxac and a Thyroid pill along with two different inhalers. The first thing I had go when this all began is I could no longer sing and then I left a pyrex baking dish on a burner that was left on and when I discovered it I removed it from the burner and it exploded! That's when I began taking the idea of I needed to see a medical doctor and learned my oxygen was only 63. Sunday for the first time since 2018 I was able to sing without my voice cracking and me choking and coughing uncontrollably! Something has to be working and I am soooo grateful to have a singing voice back.

I don't take anything... Yet. I use my C-PAP for my sleep apnea.

Alice, that's wonderful. Your time frame gives many of us newly diagnosed patients hope. For me, it's January 2022. I feel so much better on the meds. I'm still limited due to the SOB and my age. I thank God he's given me more time to love and enjoy my family.

I have PAH and take Opsumit and Tadalafil and am on O2 24/7. I have taken it for 10 years. I think left untreated PH/PAH worsens quicker. So far, so good for me.

Hi Annie, that's my actual name. If you're not satisfied with what the doctor is telling you. Please get a second opinion. Some people are not as advanced in the disease. I hope you get answers soon. Blessings.