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A myPHteam Member asked a question πŸ’­
Louisville, KY

I am on Trellegy, 3 liters of o2 and albuterol through a nebulizer. My Dr says there isnt any other treatments for PH caused by COPD. Is there anyone with this condition that takes anything to treat PH?

February 3, 2023
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Answer Summary

Members responded to a question about treatments for pulmonary hypertension caused by COPD, with many sharing that they take specialty... Read more

Members responded to a question about treatments for pulmonary hypertension caused by COPD, with many sharing that they take specialty medications beyond standard COPD treatments, including Sildenafil, Tadalafil, Orenitram, Remodulin, Opsumit, and Tyvaso, often prescribed by pulmonary hypertension specialists rather than general pulmonologists. Several members emphasized the importance of seeing a doctor who specifically treats PH, noting that many general physicians lack knowledge about available treatment options, and mentioned that financial assistance programs exist to help cover the high costs of specialty drugs. A recurring theme was the value of combining medical treatment with diuretics like Lasix for swelling, proper use of inhalers and nebulizers, oxygen therapy, and maintaining faith and a positive outlook to navigate the challenges of living with multiple complex conditions.

A myPHteam Member

Nothing that man can made...I have same thing and take two different Diuretics,,,how I deal with everything is through my friend JESUS,,,He gives me peace about it all and I believe His word that,,,I'm already Healed by His stripes ( ISAIAH 53;5) I just give Him Praise and Thank Him for another day of life,,, to get to know my friend JESUS better,stronger and deeper walk with Him...πŸ‘‘πŸ™‡β€β™€οΈπŸ”₯πŸ™ŒπŸ•Š

February 3, 2023
A myPHteam Member

Yes but you have to research because since 2017 I’ve been doing doctors will do anything to make money a lot of corra meds can make you sicker everybody body organs different

February 4, 2023
A myPHteam Member

WOW that is quite a bit to swallow. I know we can make it thru. With faith, prayer and wisdom one day at a time. Keep the faith.

July 27, 2024
myPHteam

Treating Pulmonary Hypertension (PH) caused by Chronic Obstructive Pulmonary Disease (COPD) can be challenging. Here are some treatment options based on the knowledge base:

- Long-term oxygen therapy: Improves oxygenation and prevents hypoxia
- Exercise rehabilitation: Enhances exercise capacity.
- Prescription Show Full Answer

Treating Pulmonary Hypertension (PH) caused by Chronic Obstructive Pulmonary Disease (COPD) can be challenging. Here are some treatment options based on the knowledge base:

- Long-term oxygen therapy: Improves oxygenation and prevents hypoxia.
- Exercise rehabilitation: Enhances exercise capacity.
- Prescription medications: Tailored to individual circumstances.
- Surgical options: For severe cases, lung transplantation or lung volume reduction surgery may be considered.

Managing these conditions holistically aims to improve pulmonary function and quality of life.

July 27, 2024
A myPHteam Member

I do not have Sarcoidosis, but I do have COPD and Pulmonary Hypertension. I've been using Combivent Respimat inhaler 4X a day and it helps...alot! I also have a nebulizer machine and use that as needed, but not every day. I have Xopenex rescue inhaler (lower dose Albuterol)and also take Metoprolol for my blood pressure. Water pills for my ankle swelling which is better since I have changed my diet and don't salt my food like I used to. I take D3s and 400mg of Magnesium daily at my cardiologist's recommendation. I've been on Oxygen since 2015 3ltrs..sometimes 4 when I'm struggling with pollen and humidity after being outdoors. A few years ago I was taking Seldinafil for the PH but I was always dizzy, and low bp so my doc took me off but I never got any replacement. Now I think after so many years I do need something additional. I have a new pulmonolgist and he's really good..I will see him this week and ask if he thinks I need additional oral meds. When I was hospitalized with pneumonia my old pulmonologist was not going to the hospital anymore because of covid. This is how I met my current pulomonologist who told me to avoid inhaled powdered steroids because they can cause you to get pneumonia, which it was my 2nd time in 6 months that I had pneumonia. I stopped the Advair and haven't had pneumonia since..and got a pneumonia vaccine in Dec. I highly recommend that too. We all have different thoughts and ways to address our diseases, but knowing what meds are out there and working for many people is great to know. It helps to talk with your doctor about your fears too.. it is scary, but we have to be brave, in order to fight for our life.. God Bless you!

May 29, 2023

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A myPHteam Member asked a question πŸ’­

A myPHteam Member asked a question πŸ’­
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