Thank you. You’re very kind. I appreciate your offer to help. I am too busy at this time to start such a group. It’s just been on my mind for a while. I’d love to do that!
As I continue to advocate for PH, I will keep you in mind and see where you can help. 🙂
Example would be like AA. Those meetings are support as in mental & emotional health. The support groups I have seen are wonderfully informative and useful. However they do not sit in groups sharing the personal lives and being there for one another, mentally and emotionally.
There is no dig. I just wanted to see if anyone had that type of support group. I’m thinking of a support group like is here, just in person.
I’d like to know how anyone with this type of group got started. I would like to have this type of a support group and would love advice.
Thank you for asking. 😊
Thank you. That’s very kind.
I’m helping write the book on how EMS takes care of PH patients,. I’m meeting with medical leaders for EMS to set protocols. The draft will be done on the 19th of this month. It’s a couple of days prior to an EMS convention. I’ve posted asking for anyone’s thoughts. I want to represent us fully.
After that round table, I will be flying out to New Jersey to meet up with Johnson & Johnson, Janssen. We are having dinner the night before the advocacy summit starts. I have to have the questions prepared. I may not get a chance to have those ear again. I have to make the most out of this opportunity.
Raising awareness & helping others is a passion project all around. Just using a wide net right now. Lol
I would like to find others to gather for emotional/mental health. It’s something I’d wished was available throughout my journey. I want to lift spirits and open up to others, hoping in rerun they will feel comfortable enough to do the same. We all need to have someone to openly talk to. Older generations never talked about problems. They were swept under a rug. This has made people feel like their emotions make them weak or less than. It’s backwards. The people that open up are the strong ones. They defy the norm. and keep their heads held high. That’s a true PHighter to me. ❤️
My passion project is still in my head. I have a lot of research to do first. It’s hush hush. Top secret. LOL
What is your passion project?
Jolie, It looks like you are in Slidell. I am in New Orleans. It would be great to have a support group in person. Thank you for coming up with the idea... I can see you are very busy.
Have a good day ☺️
Nothing here in Toledo