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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Treating Pulmonary Hypertension

Treating Pulmonary Hypertension

Hi everyone! I was going through MyChart one day when I noticed that one of the ER doctors said that I have pulmonary hypertension. This is how I found out that I have it. Whoever gave me this diagnosis, never explained to me what it is. So, I took it upon myself and I did little research on PH. I recently was in the ER for something else when one of the doctor's asked me "what do you take for your pulmonary hypertension?" I told the doctor that I don't take anything for it, and he told me that… read more

posted June 5 (edited)
A myPHteam Member

I've been having the same problem. Diagnosed 2 years ago but just recently became SOB. In trying to find out the cause and finally making a trip to the ER I found out it was the PAH. But no one seems to know how to treat it. I found myself repeating the same tests for the third time an said ENOUGH!! So I started researching PAH and I've decided I need a PAH specialist. I am in the process of being approved for a group at Vanderbilt. They need the records of all my tests before making an appt for me. The other doctor offices are not being very helpful in sending this info to them but I am staying on them about it. My advise is that the first thing you need to do is find a specialist and start working on trying to get in to see them.

posted October 2
A myPHteam Member

Heidi, your diastolic dysfunction and heart failure are likely associated with your PH. If your PH is still mild they may not feel medication specifically for PH is needed, or the medications to treat your other conditions could be treating both. It's amazing how many of us aren't told about PH and discover it just like you did. Normally when your pulmonary artery pressure reaches the moderate stage a right heart catheterization is ordered to get accurate measurements. They probably discovered your PH on an echocardiogram.

posted June 5
A myPHteam Member

I have PH. Mine is secondary to my Sarcoidosis, COPD, Diastolic CHF and other illness. I do not take specific medication for PH but I do take medication for regular blood pressure and heart. My ejection fraction is normal.

I found this site that explains the different between PH and PAH

https://pulmonaryhypertensionrn.com/ph-vs-pah/

posted August 31 (edited)
A myPHteam Member

I have Pulmonary Venos Hypertension. I was told that there is not a treatment for this type of PH , except to treat the cause. In my case the cause is diastolic heart failure and sleep apnea. I also have a pacemaker and 100%paced because I had an AV Node ablation.Also my PH is exercise induced.

posted August 29
A myPHteam Member

There are medications and I understand they are VERY expensive. However, I am taking only Metoprolol, Furosemide and use an inhaler - Trelegy - besides the other meds for other medical problems. This is working for me so far. I do have PH and COPD. Make sure you talk to your Pulmonologist about this. Good luck.

posted August 29

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