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Treating Pulmonary Hypertension

Treating Pulmonary Hypertension

Hi everyone! I was going through MyChart one day when I noticed that one of the ER doctors said that I have pulmonary hypertension. This is how I found out that I have it. Whoever gave me this diagnosis, never explained to me what it is. So, I took it upon myself and I did little research on PH. I recently was in the ER for something else when one of the doctor's asked me "what do you take for your pulmonary hypertension?" I told the doctor that I don't take anything for it, and he told me that… read more

A myPHteam Member said:

Heidi, your diastolic dysfunction and heart failure are likely associated with your PH. If your PH is still mild they may not feel medication specifically for PH is needed, or the medications to treat your other conditions could be treating both. It's amazing how many of us aren't told about PH and discover it just like you did. Normally when your pulmonary artery pressure reaches the moderate stage a right heart catheterization is ordered to get accurate measurements. They probably discovered your PH on an echocardiogram.

posted 28 days ago
A myPHteam Member said:

Hi Heidi, welcome. I'm sorry that you weren't told about your PH nor given any follow-up for it. You need to be evaluated by a cardiologist and a pulmonologist. They will order further testing to determine why you have PH and what stage you are in which is necessary before medication can be started. I'm glad you found this site. Best wishes, ABQ Jane

posted 28 days ago
A myPHteam Member said:

I'm new to this PH condition, also. When I was diagnosed I was prescribed Potassium CL ER 10 mg once a day and Furosemide 20 mg once a day. The medications do seem to help

Good luck to everyon🙂🙂e

posted 21 days ago
A myPHteam Member said:

Thanks Jane, I appreciate the helpful insight. I was unaware that my cardiologist and pulmonologist would be addressing or monitoring my PH. I saw my cardiologist recently and he didn't even mention my PH. He only talked with me about my recent diagnosis of diastolic dysfunction/heart failure. And when I saw my pulmonologist, she didn't mention anything about my PH. This seems really strange to me. And I have to admit, it's got me a little worried too. I will schedule an appointment with my cardiologist and pulmonologist, that way I can ask them about my PH, and find out if there is any sort of plan to address it & treat it. But if them not even mentioning my PH when they have access to my medical records is any indication of the kind of care I may receive, it's definitely got me concerned. Whoever diagnosed me didn't even tell me that I have it; I found out about it because I just so happened to get on MyChart to look up something else, and I saw it under the doctor's notes from one of my visits to the ER. This leads me to wonder how long I would have went with a diagnosis of PH, had I not of accidentally discovered it myself.
I really appreciate you answering my question on here because your answer is so helpful to me. I would never have known this. Wow, this site and it's participants really are very helpful; and a blessing!
Thanks again! 😃

posted 28 days ago
A myPHteam Member said:

Reading the above posts, I join you all about not getting much information about pulmonary hypertension. I discovered the diagnosis after reading a summary report of my medical conditions. I asked my pulmonologist tracking my sleep apnea and C-pap compliance/results and I asked my cardiologist as well as my primary care MD. No treatment options given. My cardiologist seems to just review my annual echocardiograms and make a note of progress...he said my pulmonary hypertension is improving. Why? I don't know. He also believes my fatigue is related to that. But no treatment options? I have to assume they think my current medication regime is sufficient. Really we all seem to be in the dark about this.

posted 27 days ago
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