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About myPHteam
Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Have A Question About Working A Regular Job.

I Have A Question About Working A Regular Job.

After having PH, did it take over your ability to work? I am finding it hard to work because of lack of O2 and my chest hurting and also staying awake. I have been working from home for almost a year now because of COVID. We don't want me to get sick because I'm a big baby when I'm sick. My wife and I were talking and we don't know if this is a disease that is according to SSI an approved disability disease. I'm a year and a half away from my retirement from the state and I like to work, it… read more

A myPHteam Member said:

Aaron, from what I read, PH is stated as a qualifying disability for SSD. SSD requires much paperwork and "proof". If you have medical records stating that you have PH, I think that you should contact Social Security and present that to them. They do accept right heart catheterization. They do not pay for you to obtain that procedure. It is important to know that SSD can be slow. From applying for disability benefits to the date of the decision can be lengthy. As you have already told us to work is harder each day and you do what you can at home and you don't know how much longer you'll be able to continue working because of this disease.

It is legal to work while they make their decision.

You can choose to apply online. I've done the online app. for myself and others.
keep us posted, PatV

posted 8 months ago
A myPHteam Member said:

Aaron, most people diagnosed with PH/PAH qualify for disability without having to jump through hoops. Do you have a good doctor who understands what PH does to your body? I went on disability and was scared that they would reject it, but apparently, we are sick enough, even though we don’t know it. Have you had a right heart cath? If that test says you have PH, there should be no issue. Good luck to you.

posted 8 months ago
A myPHteam Member said:

With this ph disease yess u qualify for ssi or ssd it's good to get on because with this pulmonary disease things can get worse u can have your good days and you can have your bad days but saying this to say if u decide to come outta work u will have your back up plan which will be ssi n it helps

posted 8 months ago
A myPHteam Member said:

AaronVigil
According to my PH specialist, you qualify for SSI if you use oxygen. Check it out. Good luck
Hugs
PatSmith

posted 8 months ago
A myPHteam Member said:

Aaron. From what I understand you are good to go with all coverage and benefits in reference to PH………There has been talk on the site of that very thing, all positive and encouraging.❤️ I wish you well and admire you for your positive and honest attitude.❤️ May your evening be blessed❤️ Good luck my friend.

posted 8 months ago
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