I have not been diagnosed by a Dr but have been tested for everything under the sun. Hospital 3 times in one day. I'm frustrated there must be something for this breathing issue.
I saw a cardiologist and pulmonologist last fall and they did a bunch of tests, added oxygen to my c-pap and that was all. They said I was borderline and watch me for 6 mths. My rheumatologist really pushed me to see the PH specialists at University of Utah Hospital in Salt Lake. My cardio and pulmonologist are both there. After my L & R side cath I was diagnosed with severe PAH!! I was full of water, with Rt. Sided heart failure. Wow!! Started on a big water pill and Sidenafil to start. Sure glad I listened to her. The past 3 months it has really progressed. Scary to think where I would be without listening. Bottom line-find a PH clinic or specialist!
SheilaAnderson3, sounds like you are on the same triple therapy as I am. Next you should probably have Uptravi added to your list of medications.
This seems to be helping me with the symptoms. The side effects that I have noticed aren't to severe, I'm just a little concerned with the long term effects.
No there is no cure, at best all we can hope for from this medicine is that it will slow the progression of the disease. I
I pray for all who have been diagnosed with this. I never dreamed it would be this way
No that's not common! I've got news. I'm on sildenafil & ambrisenton of which has improved my quality of life. They're are many medication combinations for our disease. OHSU pulmonary cardiac programs are worth researching at least then you'll be well educated. In mean time it's a struggle for real. The fatigue, chest pains, lethargy, shortness of breath is at times even sedatary. I focus on what I can do. Give every day an intentional focus which allows me stay grounded no matter what comes at me. I'm here if you need to talk (Phone number can only be seen by the question and answer creators) I walk everyday don't get me wrong I have down days, complications sometimes often but I choose to over one. I have the best team of doctors a person can have and have everything I need in my home to breathe betterwith an understanding with my pulmonologist if I can't get my sat O2 above 90 go to ER. My is Sheila. I'll be praying for you
Am so glad you found the good Dr's you have. They sound great!
Good luck, you will do fine. One tip
Pat : throw out your salt shaker!
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