SheilaAnderson3, sounds like you are on the same triple therapy as I am. Next you should probably have Uptravi added to your list of medications.
This seems to be helping me with the symptoms. The side effects that I have noticed aren't to severe, I'm just a little concerned with the long term effects.
No there is no cure, at best all we can hope for from this medicine is that it will slow the progression of the disease. I
I pray for all who have been diagnosed with this. I never dreamed it would be this way
Hugs,
Sheryl

No that's not common! I've got news. I'm on sildenafil & ambrisenton of which has improved my quality of life. They're are many medication combinations for our disease. OHSU pulmonary cardiac programs are worth researching at least then you'll be well educated. In mean time it's a struggle for real. The fatigue, chest pains, lethargy, shortness of breath is at times even sedatary. I focus on what I can do. Give every day an intentional focus which allows me stay grounded no matter what comes at me. I'm here if you need to talk (Phone number can only be seen by the question and answer creators) I walk everyday don't get me wrong I have down days, complications sometimes often but I choose to over one. I have the best team of doctors a person can have and have everything I need in my home to breathe betterwith an understanding with my pulmonologist if I can't get my sat O2 above 90 go to ER. My is Sheila. I'll be praying for you

PeggyArmstrong
Am so glad you found the good Dr's you have. They sound great!
Good luck, you will do fine. One tip
Hugs
Pat : throw out your salt shaker!

The right doc is key. I'm finding a new cardiologist who will do something for me