I have been diagnosed with Scleroderma and am not sure if I have pulmonary problems. I usually work out on a stationery bike for 1/2 hour, 3x a week. On those days I can’t do anything else. Most other days, I can do one thing a day, such as laundry, vacuuming, etc. I’m asleep by 2 pm and seldom am able to visit with friends. I am grateful to be alive and still work on my calligraphy which helps calm me down. Has anyone explored other avenues that might be causing the… read more
I too have problems with fatigue. I seem to do much better in the morning so I try to get my "my chores" done. I have scleroderma and PH and use oxygen 3l 24/7. I have quite a few meds but the ones that keep me stable are Cellcept and Letairis. Right now I am having trouble with my memory.
The word will not come but I will get it in several minutes. I can't blame it on meds since I have been taking the major one for over 7 years.
Agree with that a positive attitude is the way to go.
I stopped trying to figure out why so tired..it all started last year with short of breath and higher blood pressure and all I wanted to do was sleep....then after a series of tests,,,,murmer,,,aortic stenosis,,mitral valve calcifications..idiopathic fibrosis of lungs....idiopathic means don't know the reason why..have institial fibrosis,,,scarring around the aliovil air sacks..meaning the scarring will eventually cover the whole lining and then no oxygen gets through to breathe...no cure...but am on meds to help slow down the progression...can grow rapidly or slowly....mine is mild so far...so now I have to deal with my limitations...using two inhalers..no oxygen as of now..
Hi. Thank you for your message. I’m sorry to hear you’re going through the same thing. I know I shouldn’t worry so much about what people think but I feel like they think I’m faking it, or I’m lazy, or just depressed. I’m extra tired today. I hope you’re having a good day.
Hi...Me too....life is so different now....but it could be worse....just takes time to adjust....I start projects...and then don't have the energy to finish what I start....hope everyone will have a good day today.....hugs to all...