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SOB

A myPHteam Member asked a question 💭
Buena Vista, VA

My kidney doctor said being overweight could cause this Pulmonary Hypertension

June 15, 2019
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Answer Summary

Members shared their experiences navigating Social Security Disability applications for pulmonary hypertension, with timelines ranging from... Read more

Members shared their experiences navigating Social Security Disability applications for pulmonary hypertension, with timelines ranging from two months to nearly four years of waiting, and several members describing how having their personal doctor also serve as the disability evaluator helped expedite approval. Many community members described the frustration of weight gain being attributed as a cause of PH when in reality the condition itself often leads to weight gain due to reduced activity and steroid use, with one member clarifying that being overweight does not cause PH but can worsen symptoms. A recurring theme was practical weight management strategies that work within the limitations of PH, including smaller portions on smaller plates, eating multiple small meals throughout the day, reducing salt, incorporating more vegetables for flavor, drinking plenty of water, and finding gentle movement like dancing to music instead of traditional walking when breathing becomes difficult.

A myPHteam Member

I guess that is possible. I got my diagnosis when I was not overweight. Just working a lot. It was when I couldn't breathe and sat around all the time that I got over weight. The working all the time and not being able to take a potty break is what caused my kidney problems. So far I have heard a few different causes. I have been told if I didn't smoke I wouldn't have this problem. I have NEVER smoked a day in my life. My mom did. In 2002 I believe I was the first in this area diagnosised with PAH. They gave me Revatio and I had the pleasure of educating every Pharmacy I went to fill my prescription why I a female would want a man's ED drug? I had to go inside the store and meet with the main person and explain. It was quite an experience and after awhile I started just laughing with them because there were no males in my life because they called my Doctor to ask why it was ordered. HA! HA! They didn't believe me. Life is such fun at times. HA! HA!

July 9, 2019
A myPHteam Member

i applied for disability 4 months ago and am still waiting. Went to the SS doctor who said he would put in a good recommendation for me. I am crossing my fingers.

July 4, 2019
A myPHteam Member

I am on disability and I got it in 2 months

June 29, 2019
A myPHteam Member

Lol on the SOB because I knew it didn’t mean the 1st thought that popped up in my head and I was hoping someone else would ask.

Starving myself and small helpings do not help with obesity. I came to the conclusion it’s karma. When I used to talk about my paternal aunts weighing between 200 and 375 lbs and I wore a petite size 5 or 7 until I was 50, it was. Payback

Staying away from steroids does, drinking 1/2 gallon water or more daily, walking at least 3 miles 5 days a week, physical therapy end exercise without pain is how I loss weight.

BUT, the breathing gets bad and oxygen level and blood pressure drops. You damned if you do and you damned if you don’t.

A Catch 22 episode in daily life. Like Nike I just do it or try

December 18, 2019
A myPHteam Member

The sad part is being overweight causes a lot of health problems we all have.

July 20, 2019

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