Good question! Each case is handled different depending on the severity of the systems. NO Salt. Most are smokers or have been around smokers. All have some type of respiratory problems. Mostly over weight, age varies young to old. No two cases are treated the same because there is always different factors that come into play. This disease is world wide. Hard to diagnosis at first because it mimics a lot of Respiratory diseases. When a medication is decided upon it is to be taken the same time everyday, usually a Cardiac diet to follow, limit fluids, NO caffeine. exercise daily as tolerated. Tests are done usually every 6 months. Ultrasound, EKG every office visit with Labs. Judy
Meds first thing in the morning, a good Breakfast, Watch the amount of fluid intake, NO SALT, Selective exercise to keep up your strength, Talk with someone everyday! Have a check in person everyday, I sometimes need outside help. Check the water level in your O2 bottle. BRUSH your teeth. Change your O2 hose frequently, you will know when. After awhile you learn the hard way. HA! HA! HA!
Oh goodness Ken. For me it is oral meds first thing in the morning, oxygen 24/7, oral meds before bedtime and trilogy oxygen-c-pap all night. It depends on what stage of PH you are experiencing what else you can do during your days.
Your Pulmonologist should have told you what your pressures are after your right heart catheterization. If not, ask your clinic to tell you. I was told immediately after my testing and I have echocardiograms every 6 months to see if there are any changes although an Echo reading is not exact. Only a RHC can give accurate numbers, the gold standard in testing.